Hi Dave,

Welcome to Cancer Chat.

I am sorry to hear about your diagnosis and prognosis, but glad to learn that your karate has been a help with the pain. Have you mentioned the pain to your care team? It sounds as if you’ve been through the wringer with all that has happened.

 Like most of us you are are bound to have dark days. I just hope and pray that your chemo has slowed the growth down and you can feel more positive for a while..

Please keep in touch and let us know how things are going. There is always someone here whenever you feel like talking.

Kind regards,

Jolamine

Hello Dave... love your sense of humour Like you I have found my sense of humour has carried me through stage 3 breast cancer and mastectomy too ... like when in hospital I put my first prosthesis on and was so chuffed and asked the patent and her husband in next bed "what they thought of my new look" not realising it had slipped a little ... the husband turned round and said I'd better change my name to 'one hung low' we had such a good time even though we all had lots going on but I'm sure the laughter made it all bearable ..

So Dave I'm sending you a big buddy hug .. hope it all goes well and I'll be thinking of you ... xx

Yo yo cheers yo have had my stem cell transplant  should have been in between 4 /6 weeks in hospital but flew through in two weeks  two days  now just waiting game spent my fifty birthday in hospital bo ho bo ho but staff look after us made me chocolate cake  hmmmm chocolate  

Still got gave radio therapy on my  thigh and hip joint. 

Yo yo jolomine

Yo yo cheers yo

I had a fist-sized plasmacytoma in my left pelvis. After chemo I had ten days of radiotherapy to it. 3 Months later I developed radiation colitis and sepsis. Close call. Ended up with emergency removal of sigmoid colon and now have 2 bags. Having an op tomorrow to redo one of the stomas for the second time.

If I'd had an SCT I wouldn't have survived the sepsis.

I've remained laid back during the whole process, though there have been moments when I've been emotional. Glad to hear you're positive about things too, worrying about stuff never helps and I wouldn't be surprised if it had a negative effect. Possibly the opposite effect of a placebo.

Have you achieved remission?

Hi Taff,

It certainly sounds as if you’ve had a very close call! After all you’ve gone through, I don’t know how you manage to keep so upbeat.

I hope that all goes well with replacing your stoma again tomorrow and shall be waiting to hear how it all goes once you feel fit enough to come back and let us know.

Kind regards,

Jolamine xx.

Hi Jolamine,

General anaesthetic this time, so provided I wake up, I'll post tomorrow. Shouldn't be under too long, an hour or less I reckon, it's just that the surgeon needs to go a little bit deeper this time.

Don't think I've been through half of what you have but thanks for the kind words. Respect for all the support you give others on here.

Best Regards

Taff

Hi Taff,

I'll be thinking of you and look forward to your report tomorrow.

I saw my consultant 8 weeks ago, when he told me that all was fine following a radio-active full body bone scan. He told me to keep my routine appointment for January. Three weeks later, I received another appointment for today, with no explanation as to why.

I attended today to find that it was a clerical error - three weeks of bricking it for no reason! Still, they did my liver function test again and were quite happy otherwise. It's good to get some good news!

Regards,

Jolamine xx

Clerical error??? Wow! As though cancer wasn't already stressful enough! Great that all is good though. xx Harry

Hi Harry,

Thanks for your comments. I made it quite clear that I had been 'bricking it' for the past 3 weeks, but i don't think that it even registered with the consultant. The only person that I got a genuine apology from was my specialist nurse.

It was great to find out that all is ok, but my good luck didnt last for today. I had 2 cataract operations 3 years ago and my eyes were worse after that. I had to have a third because, they had tried to correct my astygitism and the initial op was 25% out.

I got new glasses 3 weeks ago and since then my sight in the right eye has deteriorated dramatically. I saw my optician today who told me that both eyes had deteriorated,  although the right was considerably worse. She explained that the membrane put over the lens has thickened, which is making my sight very hazy. I need a laser op to make a hole in the centre of the membranes and this should get me back to seeing things again.

In the meantime, I cannot drive, can read only one word at a time, because I need a magnifying glass to read one word at a time with my glasses. Even with my glasses, I cannot see my computer screen unless I have the print up at size 24.

How long am I going to have to wait for surgery? Up to a year! It's good news to hear that it can be rectified and will restore my sight, but this won't be much fun when it deteriorates further within the next year.

I hope that all is going well for you.

Kind regards,

Jolamine