Advice after surgery on a type 4 glioblastoma

Hi all,

I'm sorry I'm new to this. My partner was diagnosed last July with a type 4 glioblastoma, and then discovered he had two (I called them Bert and Ernie). He has down the surgery and radio for both and we were given a thumbs up by the surgeon. I'm terrible when it comes to panicking, but he has been happy to coast along without a prognosis etc. I was wondering whether anyone here had any stories or advice on what happens during the recovery process? I went on another UK brain tumour charity website and they were terrifying! They said he has between 12 and 18 months and probably no more than 3 years!!! He has hit the denial stage because he saw them tick "non cancerous" on a form at the hospital after Ernie was taken out, so there is no point me asking him lol. He has funny turns every now and again, like occasional loss of speech and, since Saturday, his right hand has felt "nothing like his left hand", not in a sense of pain but more in an odd sensation. Does anyone have any stories about weird things and moments you had during your recovery eye.? My friend said to ask on here as real people will be truthful as possible on this website, whereas other websites go for the scare factor :(

Sorry for how long winded that was but it's the first time I've let a portion of my fear out :(

Thank you for reading,

Lauren

  • I just wanted to stop by and welcome you to our forum, Lrurhfren, although I'm very sorry to hear the reason that brought you here.

    Hopefully, some of our members who're in the same position of caring for loved ones with cancer will be along shortly to share their experiences with you and offer advice.

    Also, if you wish to speak to someone medically trained over the phone please know that our cancer nurses are just a phone call away and you can reach them by ringing this phone number 0808 800 4040  Monday through Friday from 9 a.m. to 5 p.m.

    Stay strong, Lrurhfren.

    Best wishes,

    Renata, Cancer Chat Moderator 

  • Welcome to our friendly forum, I write under Stay Strong and chat daily about how I cope as a wife of a husband with stage four lung cancer.   I stay off websites and listen to the Oncologist and chemo team,  they are upfront with you and will answer you honestly.  Have you got a MC Millan nurse you can talk to them about anything.  It's nice you have a sense of humour you need it!   My husband has had days where nothing that's said registers, the cancer rattles around them like a black cloud,  we have no idea what they are going through.  Just be as calm as you can and stop thinking the worst,  we cannot look ahead just take it a day at a time and you will cope.   Cqz