When I get to the hospital it takes 2 hours for them to get my drugs ready for the chemo treatment which then takes another 3 hours to infuse. The hopsital is at least 1 hr drive away. So altogether I could be out for 9 hours! Who looks after my kids while my husband takes me? Because I was several hours later than expected I had to ring around from my chemo chair to organise child care for my 3 kids! Why haven't they got this system sussed yet???? I arrive at the car park and should be able to register I'm here from there. Then my medicine is already being prepared whilst I make my way to the ward and check in and the messing about that goes on thus reducing the waiting time.
The the District nurse doesn't want to come out and remove the bag and they expect me to come to them when that's not the point! I'm struggling with a young family and lung cancer for goodness sake!
The the doctors will only look at one thing at a time when sometimes you need all the mulitple problems to be dealt with together - chest infection, colosomy bag as a result of rectal cancer, diarrohea as a result of antibiotics, trapped nerve in my spine!
THE WHOLE LOT IS SO BLOODY EXHAUSTING!
So it would really help to have professional caring staff but no sign of that anywhere in my cancer journey at all!
RANT OVER.