Dreadful treatment at hospital, doctors and district nurses!

When I get to the hospital it takes 2  hours for them to get my drugs ready for the chemo treatment which then takes another 3 hours to infuse.  The hopsital is at least 1 hr drive away.  So altogether I could be out for 9 hours!  Who looks after my kids while my husband takes me?  Because I was several hours later than expected I had to ring around from my chemo chair to organise child care for my 3 kids!  Why haven't they got this system sussed yet????   I arrive at the car park and should be able to register I'm here from there.  Then my medicine is already being prepared whilst I make my way to the ward and check in and the messing about that goes on thus reducing the waiting time.

The the District nurse doesn't want to come out and remove the bag and they expect me to come to them when that's not the point!  I'm struggling with a young family and lung cancer for goodness sake!

The the doctors will only look at one thing at a time when sometimes you need all the mulitple problems to be dealt with together - chest infection, colosomy bag as a result of rectal cancer, diarrohea as a result of antibiotics, trapped nerve in my spine!

THE WHOLE LOT IS SO BLOODY EXHAUSTING!  

So it would really help to have professional caring staff but no sign of that anywhere in my cancer journey at all!

RANT OVER.

 

 

 

  • I am so so sorry to read this, you have every reason and more to RANT. I lost my husband 10th September 2016 to Junctional Esophagus Cancer. He had a full response to treatment which they said was encouraging but just 1 1/2 weeks later he was very unwell. 7 Weeks were spent battling with Oncologist, McMillan, GPs, Urgent care and A&E to no avail. No one would bloody listen. My much loved husband was told he was anxious because he was a cancer patient, because my dad died just a few months before of Esophagus Cancer and he had witnessed this, he had muscular skeletal problems caused by anxiety they said, you have IBS they said, a swelling developed which they said was a Hernia and the Oncologist also agreed with this. No scans were offered, no blood tests ABSOLUTELY ZERO. At the end of those 7 weeks he was told he had months of which he had 28 days - 21 of those days were spent at our Local Hospice who I/we his family can never express in words their devotion care and support for my husband and us his family. My husbands mental well being was never cared about by anyone else - I/we are heartbroken for what he went through - he never asked anyone for anything. He did everything he always could for anyone who was in need. He asked for someone just once to listen to him but he got ZERO. I see his last moments all the time I love him and miss him but are trying to carry on for him and our family - I PRAY THAT YOU GET THE CARE AND DIGNITY YOU DESERVE - this should not be happening. You are in thought xxx