ive had this for two years, 3 month checks now. I don't know how to say this... .... I feel sometimes it's like a competition, some people minimise it opposed to other cancers, it hurts me. I really don't want to moan, I've had four ops, not pleasant, next one may lose my eye sight in one eye ...but it's still not seen as a serious cancer. I feel for every single person with any kind of cancer...so much x