I am in my 5th year of bilateral lobular breast cancer with bone mets... I had chemo and then radiotherapy to kill my ovaries off.. I am on letrozole. I was also on 4 weekly Denosumab injections for my bones but have been off them for a year due to osteonecrosis of the jaw. This is a rare side effect of the injections.. I am under a maxilliofacial consultant but nobody seems to know what treatment to give me!!! There is apparently very little data on treatment... Is there anybody else that has suffered with ONJ and had successful treatment???? I must say other than the ONJ I am feeling great.. I am at work 36 hours a week and I look after my 3 young grandchildren... So life is great and I feel very lucky xxxxx
