Hi I was on dexamethasone for my primary brain tumour and while they worked their magic and made the pain go away I had awful side effects, hallucinations at first, restlessness, always hungry, agitated all the time and I had 2 hours sleep every day at varying times but never anymore or any less than 2 hours!! The only good thing about it was my house was like a shiny new pin!!! And I was pain free after all the suffering, I don't care about there weight gain because I'm still alive to fight another day. Keep strong x

I have had 7 sessions of Paclitaxel chemo I get steroids in my arm on chemo day then 3 days following I was taking dexamethasone.  It was gradually reduced a couple of weeks ago and have felt rubbish since no energy nauseated and just lay around everything being too much effort. I was too unwell last week to have chemo and had fainted and hit my head causing a lump so seeing oncologist tmw next chemo due on thurs im to have scan of my head soon.

Hi, I’ve been on steroids many times and I really hate them, when I was told I had to go a high dose of them for 7 days after each chemo I wasn’t happy, but I honestly can say they do help though, for the first three days I had so much energy, shaky hands and so hungry which I was glad of as I was losing so much weight. By the end of the week with no sleep I was so tired. Coming off them the next week I had the shakes with not taking them. By the third week I was sleepy again, then chemo week happened again. My chemo regime was like this but it did go in quick and was told by the doctor I had to take them as they help with side effects of chemo and I must agree with her now but not at the time.  Hang in there Marye123 you will get through this, take care x

Thanks for reply hoping I can get back on them will find out today! Rather get no sleep than feel as rubbish as I have :(( x