Hi Babe, how are you doing? Has the combo started to kick in yet? I truly hope so, been thinking about you. I have now been on it for 16 days and so far so good. Went to see onco Thursday, bloods good. Had one ulcer on tongue, which probably be more painful, if my face wasn't frozen!!!!! No change there, no movement still. Hospital staff really kind about my face, but because I laugh a lot it's pretty obvious, so we all had a laugh about it!!!. You usually hear me before you see me I'm afraid. Any plans for tomorrow night? I'm just in with family Chinese take away, will probably be soundo by midnight. Hope 2017 will be a much much better one for you. Take care Dawn xx

Hi I have been on this medication for three months compared to chemo it's a walk in the park my hair has started to grow back  the side effect are very few. So good luck life is getting better 

Hello! How have you been getting on with this drug?  I’m not completely sold on it to be honest. Would welcome some honest feelings and opinions on having fulvestrant and palbociclib. Thanks in advance :) 

Thank you Steph x

Hello

Ive secondary too. Sucks after 10 years clear . Ive started palbociclib n letrozole 9 days ago. Seems to going ok. 

Hope youre well

Hi all 

was diagnosed with BC in 2016. Tiny tiny tumor I left breast. Stage one type three. Had surgery and removed tumor plus Centinal lymph. Onca type came back high(29) . Had five chemo and 35 radio. All clear October 2017. November 2017 started getting pain in back which escalated over Christmas and became unbearable by March. Two xrays showed nothing. Then had full bone scan which revealed that the cancer had spread  to many places. Mainly in bones and mainly in spine. Given many pain killers and started on zelandronic acid and fulvestrant.  Awful to begin on first application. But body quickly tolerated it. Then I got approval for combination of lerozol and palbociclib. Been on it for two weeks. I currently feel fine and I am carrying on as normal. I take it at around 1030 at night with snack. But I wake up at around five or six with coughing fit. Not had that before. Cough for some time and sometimes I get bad nausea. The coughing is extreme. And it’s concerning me. Is this a side effect of the two drugs as I took the letrozol for one month before beginning the palbociclib and did not seem to affect me. I am hoping this drug will keep me going for some years. Does anyone else have these kind of symptoms and do they go away ???

Hi Dawn

Im on ibrance (palbociclib) and Letrozole and have been for a year now and no side effects to speak of so don’t worry x

ive been on the same combo. only side effects for me are hot sweats at night n general tiredness n more ratty with kids xx