Massive set back right at the end

Hi

i was diagnosed with ALL in March this year and went straight into treatment which meant two months as an inpatient followed by hospital visits at least three days a week for either chemo or blood checks and I had a few more inpatient episodes when I picked up infections or the side effects were too much to manage. For the last few months though I've been relatively well. I've always done what the doctors told me, when they've told me to do it. I've been out & about and managing the side effects well. But now, with only 3 weeks of active treatment left, not including down time for my levels to recover, I've landed myself in hospital again for at least 4 nights. And I'm gutted about it. 

I obviously took for Granted how well I was doing and totally underestimated what the doctors meant when they said that this round of chemo would knock me for six. I feel like this is a massive step backwards and although I appreciate I'm in the right place and need the extra antibiotics and treatment, it just feels so unfair. 

Thats it really, I just want to scream into the pillow that this feels just so unfair. 

  • Hi,

    Welcome to the forum, far better to have a rant on here than to scream into your pillow! I'm sure a lot of can relate to your frustration about this set back. It just doesn't feel fair when things are going well and then the chemo knocks you for six.

    Hope your side effects fade soon.

    Best wishes

    Dave