Endometrial Cancer

Hello to everyone using this forum. 

I am very interested to chat to any fellow endometrial cancer patients. I am 18 months from treatment but experiencing pelvic pain, which I am told is common after radiotherapy. Generally a "glass half full" person, I am finding that this is truly getting me down. Would be good to hear of others' experiences so I don't feel so alone.  Thank you 

  • Welcome to the forum Bettiboo, 

    I'm glad to hear it's been 18 months since your treatment although I'm sorry that you've recently been experiencing pelvic pain. Have you spoken to your doctor or medical team about this? If not, it may be worth letting them know as they may be able to help. Our cancer nurses may also be able to help too. If you're in the UK you can call them for free on 0808 800 4040 Monday - Friday between 9a.m-5p.m. 

    Now that I've replied hopefully others who have had a similar experience will post soon to offer their support and share their experiences with you.

    All the best, 

    Steph, Cancer Chat Moderator

  • I have the same problem - I had chemo , radiotherapy and brachytherapy after having my hysterectomy and it all finished on 5th May 2015 . I was immobile for a while after all this but I now have terrible lower backache . At first I put it down to just not getting about much and then my weight because I am too heavy but my oncologist told me it was probably because of the pelvic radiotherapy . I put up with it because it is better than the cancer and if all I have to worry about is daily pain then I will take that ! I am loathe to start taking all sorts of painkillers . How do you feel about it ? Xxx

  • hi Bettiboo, I have stage 4 endometrial cancer and so far have had 6 courses of chemo which shrunk both cancer and lesions on lungs. Although originally they said they couldn't operate because chemo results were so good I had total hysterectomy in the summer. I'm now on day 12 of 25 of rt to be followed by 3 brachytherapy which all finishes on 1st December. I love the optimism of my consultant who says he will try everything to keep me going. However I'm finding rt really stressful what with the hour drive there and then back again and then drinking all that water and hoping I make it through rt without having accident. I was told by the nurse before I started that I would probably get pelvic after pain for quite some time afterwards. So something else to look forward too hey?
  • Hello. I had Uterine cancer but the course is very similar - total hysterectomy, chemo, pelvic radiotherapy and bracytherapy. My bones hurt a lot but have been told this is down to radiotherapy as they make your pelvis very thin and like that of a much older person. I was told last week to go to my GP and ask for them to organise a bone density test so that if the bones are bad they can then treat this - ask your GP or Macmillan nurse if this is a viable option for you. I only had radio in June/July and have found the bone pain quite bad - as well as the unreal bowel issues. Good Luck