Hi

I am a year ahead of you and reach the 5 years clear in a couple of months.

I still have the coughing reflex when I eat certain foods but not like your persistent clearing of the throat which I had originally

I did have speech therapy and was given swallowing techniques and exercises which really helped with the cough. It can be habit forming so it might help to retrain your throat with a speech therapist. Worth a try a could provide such relief.

Many thanks, I think you are right, it is a habit  need to try and stop. Have found some speech therapy swallowing techniques to try.

Great, do hope they work. I also sing in the car (when no one is listening ) which helps to control the breathing and so forget about coughing.

Good luck and best wishes for the future.  

Hi,

I was diagnosed with SCC in very early October 2020 and had a partial glossectomy with radial forearm free flap, radical neck dissection etc.

Initial post op recovery was promising but I had problems with my tracheostomy,  These were soon resolved and I was discharged from hospital  8 days post op.  It's now been 9 weeks since my op and I have regained reasonable speech quality and have a decent swallow.  Eating is a chore though and my taste buds are not working that well.

My tongue is (in my opinion) way too big for my mouth now, and I often find myself trapping my tongue between my teeth.  I have very little sensation at the neck dissection site and the right side of my face permanently feels like I've just been to the dentist.  I've had a couple of excrutiating incidents of facial swelling which im told is likely lymphatic drainage issues.  Overall I've recovered well though and I'm thankful for the extremely quick and decisive action taken by the medical profession.  My consultant and indeed every single member of his team were outstanding.  I'm lucky to be here at all so I can put up with some drawbacks I reckon.

Hi I was diagnosed with tongue cancer a year ago and had the lump removed right at the back and then radiotherapy. Does your tongue feel strange still where the lump was? Mine feels so thick and lumpy and I’m so aware of it wondered if anyone felt the same. 

Hi April, sorry I can't answer your question. I have put a post up asking for some reassurance as I have some symptoms of tongue cancer and I'm really worried. Can I ask what your symptoms were please? How long did it take for a diagnosis? I'm getting worried that my doctor and dentist have got it wrong  :( x

Hello .... I had base of tongue cancer last year . I'm still getting over the treatment .

I had a sore throat for almost 8 months , no earache & no sore tongue . I sometimes got sharp stabbing pains . Doctors stood up and took notice when I got lumps in my neck . I honestly think you must go now to your doctor and even better if you can afford it go private for a ent consultation. This is what I did . Still took them a while to find anything but the lumps in my neck showed something somewhere . X 
 

please also note that if you do have base of tongue ( you may not have ) the treatment albeit horrible has a very good outcome . 
 

Go and get this checked out . 
 

love Ginny x x x

Hi Ginny, 

thankyou for taking the time to write to me. I cannot afford To go privately unfortunately! So going to have to go through all the waits alongside covid which terrifies me even more. As I said I am waiting for my ultrasound results from the lump in my neck and bloods tests, hopefully will get them back this week. Then will know more. But I am honestly freaking out as I have 3 young children. I'm petrified I am going to die from this if it is cancer! 
 

when you say you had sore throat for 8 months was it all the time? My sore throat is barely there I just get a niggling pain every now and then but this has been for 2 weeks alongside everything else x

Yes my sore throat was constant I left it a long time before I went to the doctors initially. 
 

sonthe scan you have had is in

to check the lymph glands an ultrasound is the only way to see if lymph has cancer in as this doesn't show on an MRI so this is good that they are ruling this out first . I'm not sure why you had blood test maybe to see if you just have an infection or virus .

im not going to tell you not to worry becaus you will anyway but you are still young . But try and remain positive these cancers are rare it could be something a simple as silent reflux make sure  you just keep going to the docs if you aren't happy . You know your body .  
 

keep me posted with your results . X x x x

pps ruling it out first as tongue cancer left untreated or any cancer will go to the lymph glands x x