How are you finding the trial? I hope it's going ok and working well for you so far. Hopefully other members who have been or who are on this trial will post soon but in the mean time do feel free to explore the forum and chat to others who may be in a similar situtation as I'm sure they would love to hear from you.
I have found some general information about this trial on our website as well if you want to have a look.
Hi there Lisalou, welcome to the forum, but sorry for why you're here. I had a discussion with my oncologist about this drug, but I'm not on it. I had colorectal cancer 7 years ago and had a colon resection at that time. I don't have colon cancer now, but it did matastisise to my lung. I took a few rounds of chemo back when I had the colon cancer and they had to stop it because the side effects nearly killed me. We couldn't control the side effects at all and my levels were off the map. I read the information on this drug, but I'm not sure I want to try it. I'm incurable now and the hope was that this drug may buy me more time. My question is what kind of time? Dying with this disease doesn't scare me near as much as getting really sick right now and staying that way until I do die. For me, quality of time is more important than how long I live.
I understand you are on this drug now and I wondered how you're doing with it. I would be interested in knowing how its' going for you. When you're up for it, write in and let me know. Also, people on this forum are very caring and supportive, so as you take this journey dealing with cancer and its' treatments, you will get support from people here who know what its' like to live with this disease.
Take care and the best of luck with your treatments.
Hi Lorraine, sorry to hear your situation, i know what you mean about trying to weigh length of life to quality, I agree quality has to be the goal.
I'm in a funny spot, i started on the panitumumab as soon as I was diagnosed, stage 3 colon with possible breast, the only real side effect I had was horrendous acne all over my body that came with an itch that made me want to drown myself! then I had surgery to remove the tumour which they then found was attached and spread to the stomach and spleen, the oncologist told me that the panitumumab drug had actually reduced the density of the tumour enough so that it had less of an impact on the other organs and this improved my chances, I've had another 5 rounds of chemo since and now they are talking about a possible chance of "cure" (which I very much doubt - and will never believe). But I just wondered what experience others had had of it.
Best of luck and I hope it all goes as well as it can for you xx
Hi [@LorraineD] i know our conversation was a while ago, but just wanted to let you know I think you made the right decision on the panitumumab- 12 months after my surgery and I now have new cancers on the abdominal cavity which my hospital won't operate on, they are asking another hospital if they can do anything but it doesn't look promising - looks as though I will just have to go down the palliative route and just pray I can eek out a few more years x
