Life after bilateral mastectomy

I had breast cancer in 20011 and had a lumpectomy followed by radiotherapy. In January this year I was diagnosed again this time I had to have a mastectomy so I asked consultant to remove them both and he agreed. After the surgery I had complications had to have seven units of blood and was in hospital for a week. I then had fluid build up in both breasts I was like a hot water bottle these were drained several times . My breasts were still big so my surgeon opened the scar a little and with his fingers removed loads of blood clots it was horrendous, I then had stoma bags over my breast to collect more fluid and blood clots. I had the op at the end of February and its now October and my wounds have still not healed. With all of this the appearance of my breasts is awful and very lumpy and disfigured. I can't have chemotherapy because I have other serious illnesses . I was told that I had three tumours all of different type cancer. I am having Zolidex injections for the next five years. I am finding it really hard to come to terms with my appearance and am suffering from agoraphobia.

  • I am not able to give you any medical advice as I am not a doctor and I don't know much about cancer. I was looking for the meaning of stage 4 cancer as one of my friend has cancer of the cervic and I came across your email ,in addition two of my sister's friends are breast cancer survivors and also one of my best friend younger sister is also a survivor of cancer of the vulva. My mother died of cancer when I was aged 13 am now 55. I would like to say to you and I know it is easy for me to say because I am not in the situation that you are in, but you are alive and although you are not happy with your appearance, it is out of your control. You are finding it difficult to come to terms with your body, but please remember that you are still the same person inside with just a slight change to your appearance. Each morning as soon as you are awake : thank god am alive'. You are a beautiful soul, separate from your body,meaning that the loving ,caring person who you were before cancer that person is still there. Those who cared and loved you before cancer still cares and love you. Make a promise to yourself and do not give too much attention to the part of your body that you do not like but focus on the part that you do love.

    Try and stay positive and not tobe too stress as this can prolong  your wound not healing,tyr and get a much sleep as possible.   I would advised  to go back to doctor to find out why wound is not healing, could it  be  that your are a bit run down and need somethign to boose  your immune system