Just to chat with others

Hi, I am 65 and have been 'dancing' with stage 4 Ovarian cancer since June 2015. I have had treatment involving surgery, chemo and trial drugs for 14 months so far and am due to finish Nov 2016. Both my daughter (40) have been confirmed with the BRACA1 gene and are waiting to speak again with the generic clinic.  I use the expression 'dancing with cancer'  because I have days when I could jive or jig about and other's when a waltz would leave me pooped! I have a incredibly supportive family and friends but is it normal to some times feel so alone? I try to use my good days to walk to the library, meet friends and live the fullest life I can, during the 'not so good' days I try to do chores in the morning and rest, read or knit during the afternoon. Can anyone tell me how long after treatment I will feel normal again? I feel selfish asking as I am apparently coping well. I don't know if anyone will read this but just saying these things out loud can almost put them into perspective.

Shazram

 

Parents
  • My wife is also 65 and has just had the same diagnosis as you today and feeling down. You mentioned the trial drugs. Are you able to say what these are please?
  • Hi, I am so sorry to hear about your wife's diagnosis. I have had treatment today and spoke to my Trial consultant about passing on the details, she was more than happy for me to do so. The trial is called ICON 8B, it does mean treatment for at least 18 months and the side effects are quite tiring. The details of the trial are available on the Internet so you can have some knowledge if you choose to ask if your wife would be suitable for the trial. My very best to you both, please don't hesitate to contact me if you have any other things you want to know, is your wife going to be having surgery and chemo? The worst bit is all the waiting for results and feeling that everyone is talking about you but not to you. 

    Sharon

Reply
  • Hi, I am so sorry to hear about your wife's diagnosis. I have had treatment today and spoke to my Trial consultant about passing on the details, she was more than happy for me to do so. The trial is called ICON 8B, it does mean treatment for at least 18 months and the side effects are quite tiring. The details of the trial are available on the Internet so you can have some knowledge if you choose to ask if your wife would be suitable for the trial. My very best to you both, please don't hesitate to contact me if you have any other things you want to know, is your wife going to be having surgery and chemo? The worst bit is all the waiting for results and feeling that everyone is talking about you but not to you. 

    Sharon

Children
No Data