Feeling low.

Well I hear there is going to be a heat wave this next few days so I will be making the most of it before My first Radiation starts on Thurs.

Yes im scared. I know It does not hurt but I am worried about the side effects- especially it seems the ones that can  hit you a month or years later. I want to go on holiday at the end of the year and I have tried to explain to my sister I need to feel well. I do not want to be running to the loo all week and not be able to swim and feeling sick. Sadly I do not think she gets it. 

My even bigger fear is the drugs they want me to take for 10 years.!! TAMOXIFEN. As a non smoker non drug user non junk food women  who has led a healthy life this feels so wrong to be putting these chemicals into my body. Nothing i read about this drug seems to be positive. At this point i will mention I had a grade 2 lobular invsive  cancer and a lumpectomy.

I am greatful I never had to have a full removal ( i pref that word than the "M" word) and i escaped Chemo which was just about driving me insane waiting to know as my score was low  ( 12)  and no lymph nodes involved and margains clear.

Am I the only one who is feeling very depressed about the side effects of the above mentioned. ( more so the drugs)  possible hair thining, bones effected, eye vision, weight gain, breathing problems, sickness, changes to stomach ( i have ibs as it is)  liver damage in the future, ovarian cancer the list goes on. and then what happens after 10 years ? Will i die ? im only 45 now.... will it just magically disapear and I wont have it anymore I doubt it.

It does not help I Am going through this alone, yes i have a great mum helping me and friends and a few family. But even though I am seperated 7 years all I wanted these last 2 months was my husband by my side. I don't feel I am ever going to be with anyone now and this weekend made that feeling even more intense when yet another close friend went out dating and is madly in love! New guy spoiling her and already planning date no 2 with a meal. I can honesty say last meal i had bought for me by a guy was.... well its that long i cant even recall a time. 6 years ago maybe. I'm not one to scav off guys for meals etc but god i do miss being treated, box chocs, flowers suprises, days out. 

I don't think my friends get it, they don't understand how my last thought at night is cancer, my waking thought in the early hours is cancer, I lie in bed feeling my good breast paronoid about any lump, then i feel the deep scar and the deformed side of the lumpectomy and know I will never be that sexy sassy person I was with guys before when single and before Breast cancer. I can hide it in a bra in a dress but deep down I know...

Most days I sit up the garden and look at the sky and wonder how many years I have left and regret I never found a new man to love 7 years ago and yet everyone I know moved on but I never did.. 

What quality of life am i going to have with the side effects of these drugs in my body..... I am a keen gardener but I am so tired all the time I have 0 energy latly, even walking to the shops 10 mins away with my daughter today totally wore me out. I have so much I want to do, need to do and I hate being held back. I plan little jobs in my head.  Today i will pull up those weeds,tomorrow I will change my bedding, next day paint 6 blocks off the new fencing. I am so used to being busy and doing everything myself i find it so hard NOT  to be able to hoover the whole house in one go, cut grass, do a weeks shop paint the house etc. Maybe this is why i want a new partner, i feel I can no longer cope on my own.

I worry about finances and how I will pay to keep my roof over my head when my ex stops paying. How can i get a new job when I can barly get through the day without several sit downs.

I feel like my life has changed forever and It wont ever be the same. Sorry if this is depressing but its a bad day today. last weekend i was in london X factor ! ( very tiring but totally worth it to feel  normal for a weekend) i miss the old me...

Suzie

  • Hi

    I had the operation in January 2013, then started chemo in February.  I see the Oncologist every 6 months and the breast consultant every 6 months.  I think I am right in saying that is has been researched that women taking tamoxifen for 10 years has an excellent result.  I remember being at the same stage as you, and feeling very scared, and reading all sorts of scary stuff off the net, so I decided when I finished treatment I would try and support other women going through the same.  

    If I were you, I would definitely discuss the op with surgeon, my surgeon and breast care nurse were really helfpul.  They showed me pictures of how they might look after the op.

     I have never really drank very much and aways eat quite healthy food.  I think we all look for reasons, but at the end of the day they do not know what causes cancer yet.

    Take care and keep posting for support.

    Diane xxx

  • Really sorry to read about how youre feeling Suzie.....it couldve been myself writing all of what youve written there....ive had very similar feelings t yourself.

    I have replied to you about Tamoxifen on your other thread you started ....wishing you all the best with treatment and whatever you decide is best for you :) youre not alone in how youre feeling ....its a very hard journey but does get better in time !

  • Thankyou Aysia, I have read the other thread, Ive had a good cry today, infact ive done very little else today ( sunday) except bung some washing on the line.!

     

    I just feel Like i am being made to take a drug i dont want to take and then have to put up with more life changing side effects that i dont want to go throu either. having already had all the hot flushes im dreading being put back there again ! I used to walk out of shops as i felt like i was buring up, in the que for the bank by time i got to the tills I would pretend i was blowing hot and cold with a tempature its so embarrasing, changing bedding every few days as sweat pour off me at night.  feeling of being unclean cos you sweat alot and taking 3 showers or more a day ! its not a funny thing your friend says to you when you are going throu menopause " oh you having a hot flush lol"  its deeply uncomfortbale and embassasing !

    I Have IBS, i don' relish the thought of getting bad stomaches or upset stomachs or sickness, infact i don't want to go throu  ANY OF THESE SIDE EFFECTS. I dont want to take it. and today I feel as if i might say no to it tomorrow. 

    Today I feel very depressed..... as i feel its not my decision they have already decided they have not even asked me if i want to go on it and even informed me of all the side effects to expect over  TEN YEARS !

  • Hi Suzie :)

    I can completely understand how you feel .....I hated having to take this drug as Ive never been one to take anything like that and the thought of it for the next ten yrs shocked me to say the least.....I take it but I block my thoughts to side effects of it ,as it happens ive had only one slight weight gain (which is one too much for me too)

    I have all your concerns about being in another relationship too (Im seperated ,hubby left me 2 yrs ago just after my 50th birthday) nice isnt it ? He got to go off and have a ready made relationship with a woman he was seeing in our marriage so theyre playing happy families and I got Breast cancer....great !!! 

    Im glad your talking it out on here cos thats whats needed I feel....you need to get it all off your chest and keep getting it off until you feel a bit happier...I have times where Im completely down on life just like you feel now...are there any alternatives to Tamoxifen that you could take instead without those dreaded side effects?

    I know the oncologist told me that if the Tamoxifen didnt suit me then there were always other drugs to try.

    Thinking about you and sending you a big (((((((((((hug)))))))))))) too .....hang in there!!! xxx

  • Well they want me to take it now for a month then stop it for the radio therpy which was delayed ( its been 2 months since the surgery lumpectomy now) then start it again after radiation ffs ! 

    In my mind im thinking well you know what if i had never alerted them to the changes in my breast which after a year and half of complaining of rib and breast pain they finally sent me for a mamogram I wouldnt of even known i had it ! so whats a few more weeks not taking it till the radiation is over !

    Also I want to go on a holiday with my lovely mum whos been a rock for me and my sister and kids and the longer it takes to get this radio therpy over and maybe start the horrible drugs and wait for side effects the longer its going to be untill we can go on holiday. 

    I just keep getting weepy and angry my husband is no longer here to support me and is shagging around with a girl 15 years younger ! happy  days for him ! hes never once taken me or picked me up from the hospital. we was married almost 20 years !! yet his lovely girlfriend has a fit and hes rushing by her side like shes proper ill or something !

    Bitter ? you bet i bloody am !

     

    Suzie