latest update

Hello  been a while since  posted  anything  well  here goes  my  partner  was  told he had  rectal cancer 17th  March  then  told  had  spread to  liver  ( 2 spots ) so  was  shocked to the  core  anyway  has  1st  op on  rectum  15th  April  temporary  stoma  was in  hospital  19days  due to  anastomic leakage which caused an abscess was  sent home  with  rectal catheter had it for  3 weeks  got  better  by the day  , started  going for  walks  put  the  weight  back on  (he  lost  a stone and  half in  hospital ) back to  his  pre op  weight  8 weeks  post op  goes to  see  liver specialists  who  says  yep we  can  cut  out  the  things  then  6mths of  chemo   that's  how  they  said  it  ! Told  3/4 weeks for  surgery that  was  Monday  Tuesday  gets  phone call  from  hospital  original  surgeon  busy  for next  few  weeks  so  another  surgeon  was  going to do it  get  your  bags  packed  you  coming in  next  Tuesday!  Shocked  scared  didn't know what to think  so  21st June  has  2nd  round of major surgery when  I got the  phone call from  doctor  was  so  relieved  but then  tells  me  that  instead of  2 small  spots  sized  6mm now  told  in fact  there  was  5 ... 3 at  5mm an  2 at  half a mm so  I had a  bit of a  wobble. .. so in 11  weeks  he  has 2 major  operations  learned to  cope  with a  stoma  had  rectal  abscess  and  the  amount of people  who  have  told him  how well  he  looks  even  the  pre  assessment  nurse  cudnt  believe  how well he  looked  so  fingers  crossed  he  keeps  this  fighting  spirit  up  oh  and  does  anyone  know  what  this  means  T3 N2 V1 RO M1 no  adjuvant  chemotherapy  ,I understand  the  first  two  letters  but not the  V1 RO   bit  , thanks  for reading  x

  • Wow - that sounds pretty hectic! 

    VI (rather than V1) is an indicator of Venous Invasion see jcp.bmj.com/.../102.abstract

    RO indicates no residual tumour (I.e. that the surgeon has removed all visible signs of the tumour he or she was removing). www.sciencedirect.com/.../S0344033811807004

    Hope this helps!

     

  • Thanks davek I think  I can  understand  it  ia bit  more  still  a  bit  baffled  tho  just  wish  I  was a  bit  more  medically  trained  thing is  my  partner  doesn't  want to know the  ins  and  outs he's  just  like  let's  just  get on with it  were I'm  the  one who's  asking all the  questions  he  keeps  telling me off  so  now  I have to  respect  his  wishes  but  my  mind  goes into  overdrive  and  Dr  Google  pops  up  and  I've  been  warned to  keep  away  apparently  a lot of  sites  are out of  date  

  • Avoiding Dr Google is good advice, there's a lot of outdated information and misinformation out there, just getting on with it isn't a bad approach. That said, it is always good to know what's likely to happen next, if only to avoid any nasty surprises. 

    I've always found that it helps to write down any questions I have before meeting my oncologist and also writing the answers down as I'm given them. It is amazing what you can forget due to stress. I have no medical training but you tend to become an expert by experience once you've been through this experience. My Mum had cancer, so I had a good idea of what to expect as I went down a similar care pathway.

    Best wishes
    Dave