Bowel Cancer at 32

So, was looking forward to 2016 being a great year, new job, new motorbike and heading towards a new house with my girlfriend of 12 years.  Then it turns out I had a squatter in my bowel, who I now refer to as the "squatter", an unwelcome guest that has put one hell of a downer on the year - my Cancer is quite severe, having gnome already spread to my Liver, the Primary is in the Bowel which makes it more treatable, but nonetheless, I still have one hell of a battle ahead of me - I am making a video log of how each day is going, please feel free to ask questions about what the whole process is like, and what I'm using as a source of strength - I know in the coming weeks some days will be good, and some not-so, the Log officially starts tomorrow but I have an introductory video to break the ice

https://youtu.be/5MHwAwaKs3Y

 

Parents Reply Children
  • My treatment starts today (as today's now Monday & I'll be updating my log shortly) looking forward to getting things underway, all of the staff (so far) here at my hospital have been great - thanks for your kind words & I hope you enjoy the log!!

  • OK - so I have officially started the V-log - it's a bit ropey around the edges as it's my first one, on my first day in a Hospital!! Hope you find it informative & above all enjoyable!! Thanks!

  • I will keep an eye on your logs and posts as I am wanting to see how you get on. Let me know if I can be of any use for advice although your treatment may be somewhat different to mine because my secondary aka your "gnome" was ovary not liver but the primary is the same and some parts could be relivant between treatment plans.

    I don't really want to use the term "looking forward to seeing your posts" because I would much prefer the illness wasn't in the zone at all but I admire your sense to share this time and I am keen to follow your story. Jen

  • Sorry - jumped the gun with my previous reply - again, thank you!

  • I have seen your intro YouTube video but will recheck it for updates

  • Thanks - I'm still awaiting an exact routine for treatment, but I log where I'm at each day

  • I finally have mastered accessing the YouTube video logs so I am now up to date on where your at. Hope you get some sleep and the nurses continue to  be supportive and answer any questions. Take care for now. Jen

     

  • Well done for getting through week one! Fingers crossed you can get home soon but make sure you take it easy if you do as its quite easy to over do it just because we want to keep at things as normal.

    You have done very well and it's lovely to hear of the family members being there and everyone making the effort to come and spend time with you. That is definitely as unfortunate as the circumstances are, one of the most treasured things is that those loved ones come and spend time with us and help you through. It makes it a team effort and you seem to be fighting hard so I will keep all positivity in your results are the best they can be when you receive them next week and I will tune in as usual to hear your updates.

    Take care and rest up! 

     

     

  • Hi Dan,

    Just checking in as its Day 4 of Week 3 and I have just watched your most recent video blog.

    It can be frustrating when a biopsy or test doesn't conclude what's needed and the test is required to be done again. Especially when you just want a date and drug picked and in place for the start of the chemo. Hope you get this soon so you can start focusing on the next part of this fight.

    I am sorry tomorrow means an early visit to the hospital aka the hat shop! (Good to see a new hat in circulation tho!)

    Please do let us know when you feel up to it how things went and how you are feeling after the biopsy procedure?

    Have you been advised to take a Senna type laxitive tablet (or any type) at home to try and keep things moving as the bowels are a funny thing! Especially on the morphine drugs. I am on MST and find the Senna ticks me over most of the time.  I guess a "blockage" can still be present even if movements are still happening because lesser movements can be happening or some can prove more difficult to pass than others so remains in the system longer.

    Take care and as always thanks for your logs and for keeping us all up to date. Will be thinking of you tomorrow for your procedure. Jen x

     

     

  • Hi Jen - had the Biopsy yesterday, it went very well all in all, so quite happy, it's just an unpleasant experience as you can feel them wiggling around in your innards! Hopefully they should now have what they need to get the party started - I'm off to my parents this weekend as my partner has come down with a nasty bug, so it'll be a bit lonely for a while, I am using Movicol & Lactulose for any constipation which seems to work quite well - catch up soon & thank you for your continued support