Tamoxifen

Hi, I was diagnosed with Stage 1 IDC  Grade 1 several months ago. I had a lumpectomy in February, with 2 lymph nodes removed. Margins were clear and it has not spread to my lymph nodes. The radiologist wants to start a double dose of radiation for  shorter period 3 weeks and I met with the oncologist yesterday and he wants to put me on Tamoxifen. I've read so much on the side effects of this drug and I'm nervous with the risk of cervical cancer, joint/pain, blurry vision and weight gain. He did say the treatment of the drug outweighs the risk. I know a few women say they have tolerated it well but what I've read and heard so far the majority don't. Can anyone share their experience on this drug as well as what I can expect when radiation starts. Thank you!

Parents
  • I have been on Tamoxifen for the past 6 years ( i'm on a 10 year trial ) and I can say the side affects have not been too bad. I have had the hot flushes, which are not great, but my oncologist recommended evening primrose oil ( which has helped alot! ) I have had some weight gain, but can't be sure this is to do with Tamoxifen, It's possibly stress as my husband has been diagnosed with leukaemia and we are now dealing with this! ( lightning striking twice and all that!) anyway, I think the positives do outweigh the side affects, but only you can decide what is right for you. Good luck with everything x

Reply
  • I have been on Tamoxifen for the past 6 years ( i'm on a 10 year trial ) and I can say the side affects have not been too bad. I have had the hot flushes, which are not great, but my oncologist recommended evening primrose oil ( which has helped alot! ) I have had some weight gain, but can't be sure this is to do with Tamoxifen, It's possibly stress as my husband has been diagnosed with leukaemia and we are now dealing with this! ( lightning striking twice and all that!) anyway, I think the positives do outweigh the side affects, but only you can decide what is right for you. Good luck with everything x

Children
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