Tamoxifen side effects

After 9 months of horrendous bleeding I am going to have a hystectomy 

17 months ago I was diagnosed with breast cancer & had lumpectomy & radiotherapy - everything was fine until I started tamoxifen - no one would believe me when I said I f

Felt ill, I bled for months and felt tired beyond words. I kept on going back to see if I could come off tamoxifen - and was      Finally  taken off after 5 3      Months of bleeding    I'm still bleeding 9 months later and am due to have a hystectomy in 4 days time - I could end up with cancer of the womb if left for much longer I'm told . Don't be afraid to go back if you feel ill - we should be listened to more - I knew something was wrong and I was right

for millions of women tamoxifen is the wonder drug but for some of us .... It isn't 

 

 

 

 

 

  • I'm sorry to hear that Donna and very pleased to hear you are awaiting the treatment you need. Many people have pre-menopausal symptoms like this so has your surgeon definitely attributed the bleeding to Tamoxifen or could this have happened whether you have cancer or not, or were on medication or not?

    Max x

     

  • Hello donna1,

    Thank you for sharing your experience. We are sorry to hear you went through all this.

    We have some information on these rare Tamoxifen side effects here.

    While this type of side effect is rare, you are right Donna it is important to go back and see a doctor if you have any unusual symptoms you are worried about. Our nurses are also available on this free number if you are based in the UK: 0808 800 4040, Monday to Friday 9am to 5pm

    Best wishes,

    Lucie, Cancer Chat Moderator