Life without a cure

Hello, I'm new to this as of today and don't ever use forums but I'm having one of those days that made me think I should start. I was first diagnosed almost six years ago with stage 4 bowel cancer. They say only 5% of stage 4s will live for five years and all of my treatments have had exceptional results, to the extent that I was cancer free for two years. But my bowel op had sadly left a bit behind which is in too tricky a place to get out. There are still some treatments I can have and I've been really lucky to get exceptional results so far, but that just means that everyone thinks I'll always be here and I know that helps them to cope but it worries me slightly that no-one really acknowledges how poorly I am. I wonder what they will do when I'm gone and at this time of year it just feels a bit much. I know I should be feeling lucky to have lived this long but I'm still only 39 and it doesn't seem right that it could take me away from everyone. I know I need to keep it together and continue to be as positive as I possibly can but sometimes I wish it would leave me alone for a little while. I work full time and have done throughout and everywhere I go people are telling me how brave I am but I'm not really, I'm very scared on the inside but I can't expect people to know how that feels. 

  • Hi, my name is Maria, just joined this forum so a bit scared of it.I am sorry for what you are going through and how hard it is to keep it together especially for others when all you want to do is scream and cry. I was diagnosed with stage 2breast cancer and secondary bone cancer in February this year and it has not really sunk in yet. I do understand how you feel.

  • Hiya, I can totally relate to every word you have written. I was diagnosed a year ago with stage 4 kidney cancer, there is no cure, I am having treatment to try & stop the growth & spread & every day is a struggle, but people don't see how hard it is as they just see me carrying on as normal, I'm 41 with 2 young children, so have no choice but to battle through the bad days. It upsets me that people don't understand the severity if my situation, like yours, people say things without thinking, like, but you'll be ok, you can fight this etc etc if only that were true!!

    I don't think anyone can truly understand how it feels unless they are in the same situation, so hopefully this forum will help you. I've not been on here long, but it is helping me to chat with people you totally get it & I hope it will help you too. It sounds like we are in s similar situation, so anytime you fancy chating feel free. 

    Louise x

  • Hello there, my mum has just been diagnosed with the same, stage 2 breast cancer and secondary in the bones, we are just wondering what comes next, we are seeing the oncologist on Friday
  • Hi there,  what a hard place you find your self in, my hubby and I are living this life of no cure, but he is 72 years  old and struggling  so my heart goes out to you at such a young age.  People try to stay strong but you are Human and want to stay here for as long as you can.  You are so right no one understands what you are going through, even though I live it every day I'm not the ome with the diagnosis.   What can we say to help,very little because there are no words to help, that is why people say stupid things, they honestly don't know what to say .  We have just had a so called friend ring to say someone has died that we really have had nothing to do with for years,  did this person call when treatmemt was ongoing,  chemo,radiotherapy and loss of hair, no they didn't  but they call to tell us about death.  That is how people are, they aren't living it, so they will never get it.  Chat on this forum it really helps and as there are followed threads we always have the chance to chat with you.  X

  • Hi Maria, welcome to this friendly forum.  Don't  be scared everyone is going through it and chatting helps us all.  Keep chatting and someone will always chat back.  Xx

  • Hi there,

    im 41 with two young children and I’m stage 4, secondary breast cancer on the liver... I too know how you are feeling... it’s so hard isn’t it! Just a range of emotions on a daily basis, that I. Itself is exhausting never mind the fatigue! 

    It would be nice if people thought a bit more before they spoke to ( but I guess they just really don’t understand, it’s not their fault I suppose)

    anyway I’m new to this forum but here to chat if you like ...

    take care,

     

    Lou x