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breast cancer

babslomax2k
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I am 3 yrs down the line from diagnosis why do  I still get times of paranoia if I get an odd twinge thought I could move on is their anyone that feels the same also im on tamoxifen and have been feeling achy since taking  them are there any people that have the same problam 

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    Dear Babs

    Sorry to hear you are not too good at the moment.  I am 18 months down the line from op. and radiotherapy and feel the same bouts of paranoia usually ( I don't know about you) in the night when I should be sleeping.  Once the day starts my mind comes back to normality eventually and I go with the thought anything could happen but know what you mean.  Have just been taken off tamoifen just for 8 weeks and as other things I have read you do feel better but do you know I feel my safety blanket has gone.  The next lot of meds have same side effects so I am going to make the most of my holiday.  But have recently had a mid year check as found a lump all OK.  It's a roller coaster but if we hold on tight and go with it hopefully we may be able to get off the ride in the end.  But nice to know some people feel the same.  Take care.

  • Offline in reply to katiej

    I have just had a lumpectomy - I know I have (had?!) invasive ductal cancer but am waiting for results to see if I need a second op, and what my treatment will be.

    Most of the time I can be totally calm and logical about it, and then I have a liittle panic! How do I know it's not in the other breast? etc etc. I believe I am going on tamoxifen but I have achy joints even before that!

    I would love to know what people do to focus on the positive and cope with the fear of what might come.

    I really feel for you Babslomax and sorry I don't have any answers.

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    Hi Babs, I can relate to yourself, Katie & Ellie.

    I was diagnosed 18months ago with breast cancer, Firstly, I believe anyone being told they have Cancer is prone to bouts of paranoia, we're allowed, we have a very plausible reason especially when we have chemo & lose all our hair,taste,appetite etc., etc., we've/we're dealing with a hell of a lot in such a short space of time that I don't think we realise how strong we can/have to be. So pat yourself on the back you've come a long long way a wobble here & there is allowed!!

    I had 3 ops in the course of 7 weeks followed by weekly chemo for 12 wks, had to have a picc line fitted because all my vveins had collasped when i had 3rd op. I then had 5 wks of radiotherapy. Also from September last year i've been receiving herceptin which i still have every 3 weeks so i still have picc line. I also take alendronic acid & tamoxifen, i was taking letrozole @ first but they caused me so much joint pain,(I have osteo arthritus anyway but nothing like this pain) sickness & diorreah so they were swapped for the tamoxifen. I still get aches & pains but nothing like before & not sure if it's my arthritus or the meds?. I still have pins & needles in my hands & feet but have been told that's down to the herceptin.

    My sleep pattern has also turned completely upside down (I think Katie mentioned same)  my well organised routine has way gone. I used to go out regularly with friends to lunch & evening meals but that has all gone by the way due to my unpredictable sleep pattern, i rarely go out, except for weekly hospital visits. 

    During the last 18 months i've tried to stay positive & laugh as much as possible but have had a few wobbles recently, so 3 years on Babs i think you deserve a round of applause & remember Ladies we are in the "sod it club" (my name for it) so we're entitled to feel the way we do though i really feel a good laugh helps ... mainly at myself, & as hard as it is i try not to think about it.

    Ellie ... 18 months back i felt just like you, it's the unknown that we are more scared about. I wrote down all my feeling & anxieties & discussed them on my next visit,ask as many questions as possible, hopefully this will help you to cope better.

    Best Wishes & Hugs to you all :-) X

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