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capecitabine

rocker
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I just had my first round of chemmo tablets....14 a day and had to stop after 11 instead of 14 days because of the side effects. I have a rash all over my face and even my gentials have a rash and sometimes bleed. I have a terrible taste in my mouth, was very fatigued and could hardly walk because the bottom of my feet hurt so much. Because of the bad taste in my mouth and nausea it was hard to eat.

My question is since I have no spouse or kids and am 61 should I try chemo again or just move on to a quality of life instead of quantity.

They told me I am stage 3 but they think they got most of it and my chemo is being used as an adjunct.

  • Offline in reply to davek

    I saw the doc and she lowered the prescription by 20% so hopefully that works for me

  • Offline in reply to rocker

    Thats really good news Rocker - I am sure a dose reduction will help with side-effects and still be very effective treatment for you. Crappyecitabine (as Dave & I call it) seems to be a very worthwhile drug - I have been on chemo over 3-1/2yrs constantly now and have to say that the *** worked for a long time for me. 

    Read on another thread that you have found friends avoid you now that you have cancer. Really? Thats very sad to hear and I hope that the majority have been supportive!  I am lucky enough to have some great pals who have stuck by our family and helped enormously - there have just been two life-long pals who never really got involved and who text me around every three months to say 'how are you' and 'you know where I am if you need me'.  I hate that expression!!!!!!  These are people who moved in with us when times were rough for them and their families, for whom I picked up their kids after school and fed every day for well over a year, and for whom i have spent days and days on end crying with, laughing with, and helping in every way possible.  I now realise they weren't friends at all - just takers!  Others have turned up with food parcels, run errands, and through all the years I have been battling this disease - never given up hope and been with me and my family all the way.  There are some gems out their Rocker and you will find em. AND you have lots of new buddies here now lol!!!!!! Take care and good luck with the ***! x

  • Offline in reply to max56

    wow....you have had some pretty good experiences with people. Yoou even brought a tear to my eye since I never really thought of the people on here as freinds but I admit the positive stuff and the way people chat so freely does help alot.....thanks

  • Offline in reply to rocker

     

    Be assured, I have met some lovely 'virtual' buddies here over the past few years and I hope you do too! That includes our hard-working nurses and moderators - many of whom have walked in our shoes so really understand what we are going through when offering their support.  Take care and speak soon x

    Whoops ...  almost forgot .... please ask your chemo team about Vit B6 to help with your foot pain.  My team suggested it and it really does help, also used iced foot pads and cream called 'Udder Cream' (yep really!!!!).  It is available online and used for cows with sore udders.  Caused quite a laugh in the original thread around a year ago which you can probably still access through the 'search forum' button at the top of this page on the purple strip.  x

  • Offline in reply to max56

     

    Rocker ..... I dont understand how to set up a link and cant find it on the search forum that I suggested.  However, if you click on my profile and my discussions (page 2)  its 'Hand and Foot syndrome - Capecitabine   Have just read through it and I think you will enjoy the banter - really funny at the time, with a few of those good mates I was talking about on the forum x 

  • Offline in reply to max56

    Hey rocker and Max,

    Thanks for your lovely words on the forum, on the moderators and the nurses too. You know how to make us blush! :blush:

    You made me laugh Max when you called Capecitabine the ***. I thought I would post the link to that other thread you mentioned - after all, that's what we mods do, posting links!

    So just click here and that brilliant thread will appear by magic!

    We also have some information on our site on Capecitabine which you can find here.

    Lucie

  • Offline in reply to Moderator Lucie

     

    Hi Lucie ..... good to hear from you!  Thanks for setting up the link - I wondered what you do all day haha! Thought you were like the 'naughty police', making sure we are all being nice and not saying any rude words lol!  I am in Kent today at our sons and cannot believe how hard it is raining - great!  Have a good day and love to all x

  • Offline in reply to max56

    Thanks for the ideas.....yes udder cream will be so helpful for my little udders....lol. Take care

  • Offline in reply to max56

    Max 

    that was the funniest reading (the link you mentioned) I have had in a long while!!! Even got me googling for the udder cream too, defo going to try it.  Great tips on here

    JB x

  • Offline in reply to rocker

    Rocker

    did you try the plastic utensils?  You will be a dream husband soon .... what with plastic cutley and udder cream hahaha 

    go safe and go well, heres to managing all these funny odd balls that keep getting thrown at us

    JB x

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