Hi JB,

I'm sorry I initially missed this thread.

Two years ago I was on a combination of Oxaliplatin, Crappycetibine and Epirubicin. The side effects I suffered were similar to yours. The breathing problems were exacerbated by extremely cold weather - I left the chemo clinic in a blizzard one day which was a challenge! 

The plus side is that the chemo worked and my inoperable cancers shrank by about 50%.

The only side effects I now have are that my feet often feel cold even in the warmest of weather.

Hang in there and good luck with your treatment.
Dave

Hi Davek

Thanks for the insight its always good to hear what others have gone through.  As my treatment is after surgery I have heard its successful too in the prevention of cancer coming back, well not sure entirely about that, but definitely have to stick this out.  Fantastic result you had!  Hopefully he can change something just to make it a little easier.  The stopping breathing wasn't nice hahaha

The feet were an issue first time round but manageable, this second time it was bad on the feet but worse on the hands, 9 days of the 14 day cycle (tablets) I suffered.  I sure hope something else can be done especially if it gets worse.  How did you find your 3rd treatment and how many did you have?  I start 3rd next week and doing 8 in total.

LOL at crappycetibine - I thought it was the Oxicrappy doing it to me

Thanks so much for responding

JB

Hi JB,

I had four x three week cycles on the EOX regime, 12 weeks in total. Epirubicine and Oxaliplatin by intravenous infusion every three weeks and continuous Capecetibine for the entire period.   

My understanding is that post operative chemo is designed to nuke any small growths that might have been too small to show up on a CT or MRI scan and to nip in the bud any new metastases.

I was very lucky so far as the side effectcs were concerned, though they were accumulative with the tiredness increasing with each successive cycle. I think that's why most people get a week off tha Capecetibine, to give their body time to recover. My case was slightly different as I was well into stage 4 before I was diagnosed and, of course, everyone reacts differently to chemo as our bodies are all different and the drugs we're given varies greatly.

Good luck with your treatment, it really is worth persevering :-)
Dave  

Hi JB,

I had four x three week cycles on the EOX regime, 12 weeks in total. Epirubicine and Oxaliplatin by intravenous infusion every three weeks and continuous Capecetibine for the entire period.   

My understanding is that post operative chemo is designed to nuke any small growths that might have been too small to show up on a CT or MRI scan and to nip in the bud any new metastases.

I was very lucky so far as the side effectcs were concerned, though they were accumulative with the tiredness increasing with each successive cycle. I think that's why most people get a week off tha Capecetibine, to give their body time to recover. My case was slightly different as I was well into stage 4 before I was diagnosed and, of course, everyone reacts differently to chemo as our bodies are all different and the drugs we're given varies greatly.

Good luck with your treatment, it really is worth persevering :-)
Dave