Cold caps

Aren't we going through enough without the dreaded cold caps that are supposed to help?  I was told that I could use a cold cap but nothing was explained as to what it would entail so I had no idea of what to expect.  It was a warm day when I went into Bart's, London for my first session so wondered why the nurse gave me a blanket.  She then sprayed my hair with cold water and left to get "the machine".  During this time another nurse came in and asked me if my hair had been sprayed yet.  As it was plastered against my head, I just hope she didn't think I looked like that all the time.  The machine was brought back, turned on for a while then the "swimming cap" was forced on my head.  It was so cold that after a few seconds it was getting unbearable so I asked her how long it would be on, thinking if it was half and hour or so, I could possibly put up with it.  She told me 5 hours!  That was my first, and last, experience of a cold cap.

Has anyone managed to bear the discomfort and, if so, did it help?

More hair came out this morning which was upsetting.  I know we all expect it but it's still a shock and upsetting when it happens, isn't it?

BB xx 

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  • Hi!

    I managed the dreaded cold cap for 3 sessions, however by my 3rd my hair had thinned out so much and was balding on top, not a good look and seeing my hair fall out was just getting too distressing, people say 'oh it will grow back Lisa but they r not the ones going thru this ordeal. Things got too much and I made the brave decision to get it shaved off snd it was the best decision I made, I can actually now enjoy a shower without freaking out about my hair!! Plus no more cold cap!!!!!

    Good luck with the rest of your treatment, I should have had #4 last thurs but wasn't allowed as I now have shingles!! Hopefully this thurs I can get #4 out the way. Nothing prepares u for chemo but these forums have helped me xx

  • Hello Lisacr

    Thank you for replying.

    How disappointing for you to have 3 sessions of the dreaded cold cap only to find that your poor hair had thinned to such an extent.  Yes, it is very distressing when that happens.  I totally agree with you about the things people say.  Don't get me wrong, I know they mean well but saying things like it will grow back is really of no help NOW, is it?  We're not daft; we know (hope) that it will grow back but when that seems so far away, it's of no consolation at the moment.  When did you have your "shave"?  Did someone go with you?  I'm glad to see that you feel it was a good decision for you and, as you say, you've let the cold cap know what you think of it.  I hope you don't mind me asking, but do you wear a wig or a hat now?

    How awful for you to now have shingles.  You must be in so much pain; I am so sorry.  I thought I was a glutton for punishment but you beat me.  Have you been able to take anything for it or did they think that it may interact with the chemo?  I do hope you'll be up to having your 4th chemo session this Thursday to get that over and done with.

    l had a text from someone the other day who is really worried about me (if she's that worried why didn't she phone?) asking how I was.  When I told her, her reply was that she hopes I feel better soon.  As I have another 5 sessions of chemo to go, I don't somhow think I will feel better soon, but perhaps she knows something that I don't,  Like you, this forum has helped me so much; just talking to people who have gone/are going through it is a great help.

    Do take care and no more acting silly and picking up extra diseases that you certainly don't want.

    Love BB xx

Reply
  • Hello Lisacr

    Thank you for replying.

    How disappointing for you to have 3 sessions of the dreaded cold cap only to find that your poor hair had thinned to such an extent.  Yes, it is very distressing when that happens.  I totally agree with you about the things people say.  Don't get me wrong, I know they mean well but saying things like it will grow back is really of no help NOW, is it?  We're not daft; we know (hope) that it will grow back but when that seems so far away, it's of no consolation at the moment.  When did you have your "shave"?  Did someone go with you?  I'm glad to see that you feel it was a good decision for you and, as you say, you've let the cold cap know what you think of it.  I hope you don't mind me asking, but do you wear a wig or a hat now?

    How awful for you to now have shingles.  You must be in so much pain; I am so sorry.  I thought I was a glutton for punishment but you beat me.  Have you been able to take anything for it or did they think that it may interact with the chemo?  I do hope you'll be up to having your 4th chemo session this Thursday to get that over and done with.

    l had a text from someone the other day who is really worried about me (if she's that worried why didn't she phone?) asking how I was.  When I told her, her reply was that she hopes I feel better soon.  As I have another 5 sessions of chemo to go, I don't somhow think I will feel better soon, but perhaps she knows something that I don't,  Like you, this forum has helped me so much; just talking to people who have gone/are going through it is a great help.

    Do take care and no more acting silly and picking up extra diseases that you certainly don't want.

    Love BB xx

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