Hi Allan ...... I was diagnosed with a secondary brain tumour this year but had targeted radiotherapy which has really helped with the symptoms.  Is in not possible to have surgery or radiotherapy in your case?

Nerve pain must be totally draining and I would be really interested to hear about how to control pain mentally if you ever get the chance to tell me. My symptoms were more confusion, eye problems, clumsiness and mostly have been eliminated since my procedure thank goodness.

I can imagine how tiring this must all be for you, how are you coping generally - I hope you have support around you.

Keep in touch and I hope you find others suffering with the same side-effects who can give you some support x