Letrozole

Hi update with metatistic b/c i am now going on Letrozole i have heard about the side effects but what choice do i have as there is no cure at the moment, please god willing this helps and i get through side effects !

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  • Hi

    I had breast cancer in 2010 and have now been on letrozole for 5 years. Just to let you know that apart from a few achey bones I have had no other effects. I have had arthritis for some years now so perhaps thats why it hasn't seemed too bad at all - I do remember my oncologist writing on a report about me " seems to tolerate very well" concerning this drug. I believe everyone is different so impossible to say how you will feel 'but I do not want to stop taking it although in some people I should - it makes me feel 'safe' My doctor is happy for me to continue - good luck xx

  • Hi Sitesi

    Sorry to ask but was ur bc inoperable and was it first time you had the dreadful disease? Second time for me and inoperable cant cure me so chemo which i have responded well to and now Letrozole 

  • Hi - I was very 'lucky' in that mine in 2010 was grade 111B invasive lobular cancer which was treated with mastectomy, chemo, radiotherapy and letrozole and I am keeping everything crossed that it doesn't come back!! I am so sorry yours is back! I believe Letrozole is very effective in stopping any 'stray' cancer cells becoming tumours if the original cancer was hormone type as it lessens oestrogen levels in the hope that any 'strays' will starve to death - thats how my oncologist decribed it. All the lymph nodes were affected under my right arm so they were all removed at the time of the mastectomy to try to prevent spread of the cancer. I have heard that even with higher grade cancers than mine  patients have used the drug for many years - extending their lives considerably by shrinking tumours and in some case halting it alltogether.

    all the very best

    Jan 

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  • Hi - I was very 'lucky' in that mine in 2010 was grade 111B invasive lobular cancer which was treated with mastectomy, chemo, radiotherapy and letrozole and I am keeping everything crossed that it doesn't come back!! I am so sorry yours is back! I believe Letrozole is very effective in stopping any 'stray' cancer cells becoming tumours if the original cancer was hormone type as it lessens oestrogen levels in the hope that any 'strays' will starve to death - thats how my oncologist decribed it. All the lymph nodes were affected under my right arm so they were all removed at the time of the mastectomy to try to prevent spread of the cancer. I have heard that even with higher grade cancers than mine  patients have used the drug for many years - extending their lives considerably by shrinking tumours and in some case halting it alltogether.

    all the very best

    Jan 

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