Hi Tonim ...... I have read your story on another thread and understand the turmoil you are now in and how 'mind blowing' it is. I cant add anything to what others have said regarding that but can let you know about some of the treatments I have had. I have secondary tumours in my liver and brain. In 2014 I had Nanoknife treatment to the liver - I am not sure if that is the same as RFA - it uses electrical impulses between several probes and doesnt damage 'structures'. My tumours are on main veins and deemed as inoperable because some procedures damage the veins as welll as the tumours - Nanoknife doesnt. It requires a general anasthetic but the recovery time was very quick and the procedure worked well. I now have a further two tumours growing and if all goes well with my CT scan next week, I will probably have further Nanoknife treatment.
This year I had Cyberknife treatment to my brain - it is a targeted radiotherapy which destroys the tumour but nothing around it.
I dont believe that these are available on the NHS but I am not sure of that. Luckily I have insurance at this moment in time.
If after your research you want to know more about either of these procedures, ie who to talk to and how to find out if they are suitable for your diagnosis - please let me know and I can get the info to you by email (if you want to talk one-to-one) or here on the forum. However I think the forum rules state that you cant give precise details of doctors/hospitals etc and they have stopped their private messaging system so we may have to go 'round the houses' a bit to get in contact.
Stay positive honey - according to 'averages' I should have been gone years ago but here I am still and just saw my lovely daughter married yesterday! Max x
The last time I checked, Nanoknife (irreversible electroporation) still hadn't been NICE approved for general use*, so wasn't generally available on the NHS but Cyberknife (Stereo tactic radio surgery) is approved and is definitely available on the NHS - subject to clinical appropriateness etc. My wife received Cyberknife treatment at the Clatterbridge for a non-cancer condition treated by the Walton Centre in Liverpool which shares resources with Clatterbridge.
The last time I checked, Nanoknife (irreversible electroporation) still hadn't been NICE approved for general use*, so wasn't generally available on the NHS but Cyberknife (Stereo tactic radio surgery) is approved and is definitely available on the NHS - subject to clinical appropriateness etc. My wife received Cyberknife treatment at the Clatterbridge for a non-cancer condition treated by the Walton Centre in Liverpool which shares resources with Clatterbridge.
Thanks for that Dave. NICE have now approved RFA for cancer and it is available at several hospitals around the country. I wanted to hear if anybody had actually had it. But thanks.
