A rollercoaster I really want to get off

my dear friends   

I don't know where to start or what to say.

My title says it all. As you all know since my

Cancer I had 3 strokes and have been battling 

With mobility which gets me down and hard to 

Cope with way I am. 

Then my health got worse with troubles with my liver which I'm waiting biopsys to see if it's the bigC , then to top it off I saw cancer doctor on Thursday who told me after looking at X-rays and not being able to move knee that ive got to have more majour surgery, why is life so unfair? 

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  • Hi MLS,

    So sorry to hear that life is being a b1tch at the moment. I'm also having technology problems, as I posted a reply last night which has disappeared!

    I guess life seems so unfair at times because bad luck is such a random occurence. If it wasn't random, rapists and serial killers would die young and nice people like you and me wouldn't develop cancer :-)

    I hope you manage to somehow keep going and don't give in to the temptation to jump off this rollercoaster ride that we're sharing. You and others on this forum gave me hope and encouragement when I first started this white knuckle ride - I hope we can do the same for you now.

     

    All the best
    Davex   

     

     

     

  • Hi all

    Thanks for all your replys,ur right things are so 

    Differecult right now and I don't see a ending.

    I go tomorrow to see consultant tomorrow to talk

    What to plan is to check if big C is back and to 

    If I need majour surgery again,  so scared

  •  

    MLS .......  wish I could say something to make this all go away, you have been through so very much and no-one deserves a break more than you.  I will be thinking of you tomorrow and hoping that there is some good news from the consultant.  Your forum friends are always here for you and are sending you all the love in the world x

  • Just sat here crying when will this end!!!

  • Hi MLS.  What was the news today from consultant honey? X

  • Basically he didn't want to admit it needs fixing and it had not worked, he also said I will be like this for the rest of my life, even though I have options but he won't do it, the problem ive got is only primary bone tumour unit surgeons will touch me.... It's all down to money. I'm really deversated mortified, I really don't know how or who to turn to to solve this mess, wish I never had the operation in first place. And to top it off there is a chance  of c is in my right leg now waiting for tests for that too. I hate this!!!

     

  •  

    MLS ...... Wow thats a lot to take in and I am not really sure I understand it all if I am honest - pls check your emails sweetheart cos will send you a message privately x

  • MLS - were your liver results OK? 
    Will you need more surgery on your knee?
    When do you next see your consultant?
     

    Best wishes
    Dave

  • Hi dave still waiting for my liver doctor appointment it was bone spealist the doctor I see in local hosp said I need more surgey due to plate to close to knee joint and the doctor who I went back to who did surgery originally want he didn't want to admit the surgery hasn't worked as good as should. So now I need to fight all over again but the problem I have dave is only primary bone surgen will operate and there only 5 centres in UK next are Birmingham,Newcastle and two in London, but no one is keen to touch another surgens mess.really need solution.

     

  • Hello Mylittlesunshine,

    Poor you, you seem to have gone through so much recently. I am glad you are getting such great support from your forum friends like davek and max56 to name just a few who really care about you. I really hope you find a solution.

    If you want to have a chat with our nurses first thing on Monday, don't hesitate to pick up the phone - it's free from UK landlines and most mobiles - the number to call is 0808 800 4040 and they are available Monday to Friday 9am to 5pm. It might help you to talk and go through everything with them. Our nurses are really friendly too so don't hesitate!

    Warmest wishes,

    Lucie

     

Reply
  • Hello Mylittlesunshine,

    Poor you, you seem to have gone through so much recently. I am glad you are getting such great support from your forum friends like davek and max56 to name just a few who really care about you. I really hope you find a solution.

    If you want to have a chat with our nurses first thing on Monday, don't hesitate to pick up the phone - it's free from UK landlines and most mobiles - the number to call is 0808 800 4040 and they are available Monday to Friday 9am to 5pm. It might help you to talk and go through everything with them. Our nurses are really friendly too so don't hesitate!

    Warmest wishes,

    Lucie

     

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