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A rollercoaster I really want to get off

Mylittlesunshine
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my dear friends   

I don't know where to start or what to say.

My title says it all. As you all know since my

Cancer I had 3 strokes and have been battling 

With mobility which gets me down and hard to 

Cope with way I am. 

Then my health got worse with troubles with my liver which I'm waiting biopsys to see if it's the bigC , then to top it off I saw cancer doctor on Thursday who told me after looking at X-rays and not being able to move knee that ive got to have more majour surgery, why is life so unfair? 

  • Offline in reply to max56

    Basically he didn't want to admit it needs fixing and it had not worked, he also said I will be like this for the rest of my life, even though I have options but he won't do it, the problem ive got is only primary bone tumour unit surgeons will touch me.... It's all down to money. I'm really deversated mortified, I really don't know how or who to turn to to solve this mess, wish I never had the operation in first place. And to top it off there is a chance  of c is in my right leg now waiting for tests for that too. I hate this!!!

     

  • Offline in reply to Mylittlesunshine

     

    MLS ...... Wow thats a lot to take in and I am not really sure I understand it all if I am honest - pls check your emails sweetheart cos will send you a message privately x

  • Offline in reply to Mylittlesunshine

    MLS - were your liver results OK? 
    Will you need more surgery on your knee?
    When do you next see your consultant?
     

    Best wishes
    Dave

  • Offline in reply to davek

    Hi dave still waiting for my liver doctor appointment it was bone spealist the doctor I see in local hosp said I need more surgey due to plate to close to knee joint and the doctor who I went back to who did surgery originally want he didn't want to admit the surgery hasn't worked as good as should. So now I need to fight all over again but the problem I have dave is only primary bone surgen will operate and there only 5 centres in UK next are Birmingham,Newcastle and two in London, but no one is keen to touch another surgens mess.really need solution.

     

  • Offline in reply to Mylittlesunshine

    Hello Mylittlesunshine,

    Poor you, you seem to have gone through so much recently. I am glad you are getting such great support from your forum friends like davek and max56 to name just a few who really care about you. I really hope you find a solution.

    If you want to have a chat with our nurses first thing on Monday, don't hesitate to pick up the phone - it's free from UK landlines and most mobiles - the number to call is 0808 800 4040 and they are available Monday to Friday 9am to 5pm. It might help you to talk and go through everything with them. Our nurses are really friendly too so don't hesitate!

    Warmest wishes,

    Lucie

     

  • Offline in reply to Moderator Lucie

    MLS. .... Lucie is right, we care about you very much!  I think ringing the nurses is a great idea! Please call them x

  • Offline

    hello mylittlesunshine i have just been diagnosed with liver cancer grade 2 and your words say it all i feel like im in a room with no windows metal walls the heat is boiling and the walls are closing in i start chemo tomorrow and i think i will take a panic attack im not going to sleep for a long time i feel like im going to breakdown over this week it will all come over me i know it so sorry for you i didnt expect liver cancer i got a mri for ovarian cancer and then i got this news 

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