hello

Hello, my 3yr old has ALL leukaemia. Just wondering if anyone else has had family and those closest to you turn their backs, make you're life even more stressful and then blame you for them not wanting to know you? I've had people tell me "it's only cancer its not like she's dead" "autism is so much worse then cancer" "you've changed" "you push everyone away that's why they leave you". Please bear in mind myself and my husband have never selfpityed or pushed anyone away. we have go on with this battle and still been their for those whom have bad mouthed us and left. Has anyone else had this kind of treatment?

  • Hi eviesmum,  Having a daughter go through treatment is all time consuming and emotionaly draining.  Of course your priorities have changed, you have no choice, your daughter needs you now.  Treatment turns family life up-side-down.

    My daughter - now in her late 20s was treated for ALL.  I did have a close friend who although supported me keep her children then aged 10 and 8 away, I assume she felt she was protecting them from real life.  My daughters elder sister was told all sorts of nasties in the playground ( I can only assume they heard this from their parents!!) I did not find this out until years later which made me feel guilty that I had not met my elder daughters needs.

    We can't choose our family but we can choose and decide who our friends are.

    I'm really sorry you have been hurt by some uncareing remarks.

    Big hug, take care, Gardenlady.

  • People can be so cruel. I'm not nasty at all, untill people upset my children. People have taken the mick out of Evie when she bloated out from the steroids and I could see how upset she got. I learned to look the bully in the eyes and say "think it's ok to take the Mick out of a child with cancer?" amazing how people shut up. Generally people have been amazing and she's well loved by others. Just really upsets me how family can ignore her and walk away from her and tell me it's my fault. I keep my head held high and tell both my girls how amazing they are. I have found a pattern with the people who have gone, they all complained about life.... And even with Evie going through all this I was still their for them and sent them nice bday cards and presents, I got nothing. You're daughter is amazing beating cancer, you must be so proud of both of them. Xxx
  • some family we would not choose as friends! Good for you that you have not come down to their level.  You are doing an amazing job.  You and your daughters will be stronger for your experiences. Keeping positve can be difficult at times but we more than others know that life is for living, helping us consentrate on the quality of life.  I had to get rid of a lot a trivia and trash  ( time constraints) when my daughter was being treated.  After treatment finished life was better for all of us, we realize what  is important and precious.

    Yes I'm very proud of both my daughters, both going on to uni,  and doing well, despite the the disruption and one missing more than a year of school.

    Take care, gardenlady.