Endometrial Stromal Sarcoma

I have an Endometrial Stromal Sarcoma and had surgery 2 years ago followed by intense radiotherapy. I have 3 month checks and I am on Anastrozole drug which main side affects for me are burning up all the time and bone ache. I stay positive with the help of alternative therapies and go to Christies for 3 month checks. Anyone out there with the same rare, aggressive Cancer? x