Some fantastic news!

Hi forum friends, I'm just back from getting the results from my recent surgery. The pathology showed it to be a benign mass (neuroma)! Fantastic news! The liver surgeon is now going to refer me to the thoracic specialist and he'll take it from there! I asked about time frames and it's unlikely to be before February next year, so the liver doctor told me to go and enjoy a fantastic Christmas! He also advised me to stay off work until the New Year - sounds good to me! So, I'm sitting here, slightly bemused and letting the good news sink in! Hugs to all, Jo xx Grrr! It's posted twice! Not sure how to delete one of the threads! Any advice?
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  • Hi Jo,

    Wow, I am so pleased for you and no wonder it's taking time to sink in. You so deserve good news for you are an inspiration to us all and have such a lovely sense of huimour.

    I wish you and you other half a wonderful weekend, Hugs, a delighted Brian

  • Hi Brian and Lorraine, thank you both for your very kind words . . . made me blush! I'm going to follow the doctor's advice and stay off work - will miss the little ones at school, but their knack for 'sharing' bugs is a very good reason to keep my distance! You may notice a duplicate thread of mine - think I was a bit giddy and hit ' post now' twice! Trouble is, I can't work out how to delete one! Hugs to you both, Jo xx wow, Lucie, what timing! Thank you very much for your thoughtful message and your offer to delete my 'spare' thread! I do like a tidy forum haha! xx
  • Oh wow = thats great news! You got to hand it to the doctors = they sure know how to make Christmas shine. Yes - we are over the moon for you and yours. A bit of good news. Great. You are right about school = one school down here has closed with some mystery tummy bug and sickness and every one is going round with red noses and bad coughs. I am constantly washing my hands to keep it away.. *so far so good!) but I don't to bring anything home.

    Have a lovely Christmas Jo 

    steven

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    YEAH!!!!! Brilliant news Jo!!!!! xxxxxxxx

  • Hi Steven, thank you for your kind reply. Wow, a school closed by you! Could it be the Norovirus has hit ? My colleagues have kept me informed about what's going round, and hand, foot and mouth is in the school community! Certainly don't want that for Christmas. Good idea to keep washing your hands. We had a nurse into school to do a hand washing workshop with the children - she brought in an ultra violet light box which showed up germs on hands - one little lad's hands glowed bright blue!!! I carry a small bottle of hand gel with me - not as good as soap and water, but a good stand by when out and about! I wish you and your wife a very happy Christmas, Jo xx
  • Wow Max, it's really sinking in this morning - I slept really well last night too! Obviously been stressing more than I realised! Will email you soon, chick. Xxxxxx
  • Thank you Jo = yea - its some sickness bug at the school. I work in a supermarket (Asda) and I get through a large bottle of hand wash and a whole roll of towels every week to keep clean. I get a shower when i get in so not to pass on anything to Anne. Actually we had some good news as well - she passed her check up on Tuesday and is booked for scan in Feb. Its a year since the operation. Its a funny life turning event. She didn't want me to give up work - so I have soldiered on (it was hard not to cry at work - but my colleagues have been truely supportative as has Asda). Things have settled since and I am back to my studying - this time a study on how Myopia develops in children. I see lots of kids every day and so get lots of first hand chance to study this. I dare say that in the future - looking after your eyes will be part of the curiculum. Its been Christmas in Asda for a while - my best time and many of us dress in Christmassy clothes. Its a lot of fun. Nearer Christmas we will go quiet on our dept (opticians) I will transfer to wines and spirits which is manic! 

    So, we are on hold until Feb. Anne has kept the stoma and it is no problem to us. I order the stuff every month. Its jolly nice to hear your good news - such a bumpy road - eh? I bet you will be happy to get back to work - I am sure it won't be long - so enjoy every day off until the dreaded day of returning to the workhouse!!!

    steven xx

  • Hi Steven, great to read Anne's good news too! So glad your colleagues are really supportive - it makes such a difference to have everyone spurring you on! Your studies sound interesting - is myopia short-sightedness? (Dredging up my biology O level ! Hyper metropia is another eye condition I recall but can't remember what it is - long sightedness maybe! Wow, this could turn into quite a science lesson! Haha! I popped into work this morning to watch the littlies perform their Christmas play - more a winter play as the older children do a more traditional Nativity. It was very heartwarming! Nice to see my colleagues too, but also great to leave them all to it! Hope you don't mind me asking, but has Anne chosen to keep her Stoma, or is a reversal not an option? Mine is 15 months old now and I've just adjusted what I eat. A reversal is on the cards for me, it's just that more flipping tumours keep taking priority on the operating list! Enjoy your new role in the alcohol section - from optical glasses to wine glasses in one easy stride! ;) Take care, Jo xx
  • HI Jo

     

    We are so glad things are good for you and your partner = we both wish you a smashing Christmas. Well, Anne had her op. about a year ago and came out with her iliostomy and a Dansac bag. It leaked almost immediately and I scoured youtube and then returned to our stoma nurse to change all her stuff to Oakmed bag etc. Since then its been brilliant and we are both happy and she enjoys her grub etc. She heard so many things about reversals she decided against them. The problem seems to be urgencies and leaks. Her cousin (man) has had a reversal and he can only eat in the evening at home. So, that put Anne off and I personally dont mind it = so the stoma stays! They were keen for her to have a reversal = but are very hedgy about its possible success. She says that the nurses privately told her that if the stoma suits her - then leave well alone! We aim not to have any more operations unless strictly needed. Certainly, the people I talk to at work (I am an optician) who have reversal find problems and its the sort of problems that would knock Annes confidence. She explored diet changes and it all settled down. The rectum is the storage area = that was all removed. She has her big meal at 6pm and empties the bag 10pm ish, 3am ish and maybe 7am. Its fit to bursting then!! But she drinks a good litre of water before bed. During the day she must empty the bag three times I guess. She varies it by eating at different times and we go out all day with no problems.

    Myopia is short sightedness btw. I love study and research and am working on how to advise kids to keep their sight. Perhaps its to do with schools windows sizes. We find a spurt of kids with shortsight in the spring and much less in the Autumn. So, light plays a big part. I know that old school buildings had massive windows = maybe this was a positive thing then.

    I am also studying watery eye and dry eye from chemo. We get many patients on chemo at work.

    Sorry for a long post = but we do wish you well – every day we place a candle in our front window for everyone battling Mr. C. and bring to mind you and everyone else here and who we have met =

    xx

Reply
  • HI Jo

     

    We are so glad things are good for you and your partner = we both wish you a smashing Christmas. Well, Anne had her op. about a year ago and came out with her iliostomy and a Dansac bag. It leaked almost immediately and I scoured youtube and then returned to our stoma nurse to change all her stuff to Oakmed bag etc. Since then its been brilliant and we are both happy and she enjoys her grub etc. She heard so many things about reversals she decided against them. The problem seems to be urgencies and leaks. Her cousin (man) has had a reversal and he can only eat in the evening at home. So, that put Anne off and I personally dont mind it = so the stoma stays! They were keen for her to have a reversal = but are very hedgy about its possible success. She says that the nurses privately told her that if the stoma suits her - then leave well alone! We aim not to have any more operations unless strictly needed. Certainly, the people I talk to at work (I am an optician) who have reversal find problems and its the sort of problems that would knock Annes confidence. She explored diet changes and it all settled down. The rectum is the storage area = that was all removed. She has her big meal at 6pm and empties the bag 10pm ish, 3am ish and maybe 7am. Its fit to bursting then!! But she drinks a good litre of water before bed. During the day she must empty the bag three times I guess. She varies it by eating at different times and we go out all day with no problems.

    Myopia is short sightedness btw. I love study and research and am working on how to advise kids to keep their sight. Perhaps its to do with schools windows sizes. We find a spurt of kids with shortsight in the spring and much less in the Autumn. So, light plays a big part. I know that old school buildings had massive windows = maybe this was a positive thing then.

    I am also studying watery eye and dry eye from chemo. We get many patients on chemo at work.

    Sorry for a long post = but we do wish you well – every day we place a candle in our front window for everyone battling Mr. C. and bring to mind you and everyone else here and who we have met =

    xx

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