Hi people, just wondering if anyone has experience of enlarged spleen (20cm) who has low grade follicular cancer and stage 3. I'm struggling at the moment to cope with waiting for my appt' on 3.9.14 where he will assess weight (down from 9 1/2 stone to just over 8 1/2 stone) and blood tests taken that day and scan results. No liver or kidney problems.

I was diagnosed last November, on wait and watch. After the initial shock I felt all ok till spleen grew about 8 weeks ago. This has put me off balance, back to square 1 and finding it difficult to put on a brave face at work and with grown children. Partner good and supportive, friends also supportive, but I don't feel like seeing people much right now as I don't have the energy to be social.

I wonder how others have coped, did they have treatment or live with enlarged spleen?

Thank you for any feed back - Sara.