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Some goodish news, but more tests needed.

Meerkat@65
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Hi forum buddies,

I hope you don't mind if I have a bit of a rambling rant, but I'm just  back from the appointment to discuss the results of my last lung CT scan.

I only had the scan last Friday and was pleased that the requesting doctor (liver surgeon) was 'on the ball' and had sent a clinic appointment for today. (Turns out it was the specialist nurse who was actually on the ball with the appointment.)

Unfortunately, the doctor hadn't been able to meet with the radiographer before today's appointment so although he was 'reading' the report to me, he didn't seem as up to speed with information as he usually does!

The upshot was, there is still only one lung lesion, but it has doubled in size since the last scan back in May (still very small at 6mm.)

So next steps are an MRI of my liver to rule out any recurrence of cancer, another PET scan to see if the lung lesion is still 'hot' and that it is the only hotspot in my body and then an MDT meeting to discuss results and treatment options.

The liver doctor was talking chemotherapy again, but as I reminded him, I was intolerant to the mildest form I had last year!

He also said that the lung surgeons in this health authority region, are notoriously reluctant to do metastasised lung resections from primary colorectal cancer, but given my age he would argue my case and advise me to have it done. This of course, is all dependent on a clear liver scan and no other hotspots!

The specialist nurse was unavailable today, but she is going to ring me tomorrow, hopefully having arranged these two scans. (Hope she's on the ball there!)

As we left, the doctor did reassure me that the timescales involved wouldn't make any difference to my lung and to "try not to worry" and to "go and get on with your life."  I know what he meant, but once again, it's the age old 'waiting game' scenario!

I'm focussing on the positives that it's still only one lesion, but I think I'd stressed myself out so much before the appointment (worst case scenario mode!) I felt deflated rather than uplifted as I left the hospital.

(Apologies for any insensitivity in my rant, as I know many of you would do anything for this result!)

Rant over! Thank you for reading.

Love Jo xx

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    Hey Jo Just wanted to say hi and wish you the very best of luck for tomorrow Hope to hear from you once you are up and about Jayne xx
  • Offline in reply to Barbarella
    Hi Jayne, Thank you for your kind, good luck wishes! I'll be thinking about you too, as you go for your appointment tomorrow. Hopefully, your consultant will be very informative, but I always tend to go to appointments armed with a list of questions! I hope you get a date too! How is your first week back going? I finished at 3 yesterday, and almost had to be escorted out as I was still trying to tie up all loose ends! My colleagues promised they would finish off the never ending list of jobs! (Made me wonder what I'd actually been doing all last half term! ;) ) Today is a day of odds and ends - sick notes, prescriptions, hospital packing, etc, the fun never ends haha! Have a good weekend and I'll look out for your post about your consultation, when I'm back in cyber space! Jo xx
  • Offline in reply to Meerkat@65

    Hi Jo,

    Just wanted to wish you all the best for tomorow. Take care and look forward to chatting to you again soon.

    Have stocked up on nuts so will be even more nutty than normal by the time the weekend arrives, Hugs, Brian.

  • Offline in reply to Meerkat@65

    Hi Jo

    Keeping you in my thoughts, sending virtual hugs and hope your op goes well.  Enjoy some TLC and be good! Jules x

  • Offline in reply to Meerkat@65

    Hi Jo, thinking about you today and would have messaged you sooner if I could have figured out this new format on the forum. I hope all goes well and look forward to hearing from you when you are able. Hugs.

     

    As always

    Lorraine

  • Offline in reply to LorraineD

    Hi jo ..... also thinking of you. Please email me sometime, didn't get a chance to note your address before the PM was closed, but think you have mine. Also saw your post that you had PM'd me but the site then closed down so I didn't see that either.  How are you and any more news re treatment? Thinking of you x

  • Offline in reply to LorraineD

    Hi jo ..... also thinking of you. Please email me sometime, didn't get a chance to note your address before the PM was closed, but think you have mine. Also saw your post that you had PM'd me but the site then closed down so I didn't see that either.  How are you and any more news re treatment? Thinking of you x

  • Offline in reply to max56

    Hi JO,

    Just got back onto Cancerchat this morning. 

    Working my way round and found your thread.

    Just want you to know I am and have been thinking about you. Sending loads of virtual mates hugs and look forward to hearing how you are doing. 

    Annabel xx

  • Offline in reply to Annabel
    Hi lovely forum buddies! Thank you all for your supportive messages! I'll keep it brief (hard to believe, I know! Haha) but just to say I'm back on my sofa watching wallpaper TV! Discharged today after Friday's op! The operation went well, the surgeon removed one suspicious area and had a thorough 'look round' in my tum! He said early indications from the pathologist show that it may not even be cancerous! I hardly dare to believe it until I get the official news in two weeks and my partner and I have decided to keep that bit quiet, although telling everyone that the surgeon had a really good look round in there and didn't find anything major or surprising! (Certainly feels like he had a good rummage round! Haha!) So now, it's plenty of rest, enjoying a decent shower and trying to get to sleep in a quiet house - no bleeping monitors, no staff waking you to take blood pressure etc etc! I'm loving all the new avatars! So many animals, I see. Except you Brian! I'd have thought you'd have chosen a squirrel! Hehe! Not one available as handsome as you though! Will keep you posted and follow how you're all doing too - bear with me if I'm quiet for a day or two! (Max, will email you soon, honey.) Again, Thank you all for thinking of me - it's so lovely to feel your friendship on the forum! Just what the doctor ordered! ;) Much love, Jo xxx
  • Offline in reply to Meerkat@65

    Hi Jo

    Really pleased to read the great update (certainly hoping all that rummaging pays of in the best possible way).  Sending hugs and make sure you take it easy.  Am sure the other half will keep  you fed and watered. Take care.  Jules x

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