I think it's back !!!!!!

Hi Everyone

Well I've not been on here for quite awhile

As I've been going though alot at the moment.

AnywAy the past month or so my pain level

Has got worse and mobility had decreased

In movement to walk so I've been gp a few times

And have increased meds.

This week had to go back to gp as the pain has not

Been under controll and has spread to my left hip

And into my lower back, yet again another increase

In meds and awaiting a ct scan as he thinks the cancer

May be back and has spread to other parts ,

I'm so scared just don't know when it's going to end.

Parents
  • Hi all

    Well it's been sometime since I updated you all

    As many of you know I have been fighting my hospital

    To change to new hospital, well finally I got to see my

    New doctor on Thursday,

    After 1 hour consultation ( unlike the 5 mins I used to get)

    I'm being sent for some emergency scans, he said

    That there is a big chance that the CANCER is returning

    And that's why ive got so many problems with my leg,

    My mobility has decreased, my leg now goes cold

    Completely and turns blue/ purple and pain increased.

    They are also going to scan my hip and lower back cos

    I'm having pain there to. As you can imagine I'm worried

    And scared of what the out come will be? Or am I gping

    To be left like this for rest of my life.

    I asked if he had a plan but he didn't want to go into

    Detail till results are in, so now yes it's a waiting

    Game and another roller coaster that never ends.

  • MLS, I have been reading up on your latest posts and my heart goes out to you. You are sure having a tough time of it and going through so much pain from your disease, but also having to deal with a health care system that doesn't always put the patient's needs first. As if you didn't have enough struggles, you needed to use your energy to try and get someone to help you. I hope now that finally, someone appears to be on track with getting things done, that you will get the services you need so that you will have some quality of life. As both Max and Jules have said, come on here as much as you need to, and you can rant and rave all you like; you have earned the right to do that. Let us know how you get along with your new doctor, and the results of your latest scans.

    Take care and hugs to you from me.

    Lorraine

  • Hi all

    Today is the day I go for my CT scan

    I'm nervious don't know why it's ony

    A scan xxx

  • Hi Mylittlesunshine,

    Just wanted to wish you all the best for today. I think it's only natural to feel nervous pr apprehensive when going for scans or test for we are never sure of what they may find. I know you may have to wait to get the results and this also is a time where we also feel worried. I hope the scans turn out okay but just remember your forum buddies are here for you at any time, Take care, best wishes and will be thinking of you, Brian.

  • Hi LMS

    We all get anxious as appointments approach but hope it goes smoothly and will be thinking  of you. Sending hugs.Jules x

  • Hi Mylittlesunshine,

    Just wanted to echo Brian's and Jules' wishes.

    We're all 'virtually' there with you.

    Hugs to you, Jo xx

  • Hi MLS, thinking of you today as you have that scan you've been waiting for. I hear what you're saying about being nervous; its' not the scan you're scared of, its' what the results might be. I can commisserate with you on that note. I'm waiting for an apt. for a PET scan and I'm not scared of the scan, but like you, I'm scared of the results. As bad as things MAY turn out, dealing with what we know as opposed to what we don't know, at least for me, is better in the long run. When I don't know what's going on, I'm all over the garden path and really scattered; once I know the results, even if they're not good, it is what it is and then I deal with it the best way I know how. At least I can focus at that point.

    Having said all of that, I wish for you that the results of your scan turn out to be the best possible for you to have a good outcome. Just know that we're all in this together and supporting one another on this journey that we wish we were not on. Do you know how long you will have to wait for the results of your scan? How did you manage to get an apt. for a scan on a Saturday? That would never happen here. Remember, in as much as we can, we're here for you and wish you best of luck.   

    Take care.  HUGS

    Lorraine

  • Hi all

    Just a quick update I was rushed into hospital

    By ambulance today with a hypertensive

    Crisis and heart pain .

  • Oh sweetheart,

    Sending love, healing thoughts and hugs

    Xx

  • Gosh MLS....  i am so sorry to hear that. How are you now? xx

  • Mylittlesunshine, I was just as shocked as everyone else on the forum to read this. Hope you are ok - all the Cancer Chat team is thinking of you right now and hope you are looked after well and that you feel better soon.

    Lucie, Cancer Chat Moderator

  • Keeping you in my thoughts and hope hospital can make you more comfortable a.s.a.p.  Bigs hugs  Jules x

Reply Children