I think it's back !!!!!!

Hi Everyone

Well I've not been on here for quite awhile

As I've been going though alot at the moment.

AnywAy the past month or so my pain level

Has got worse and mobility had decreased

In movement to walk so I've been gp a few times

And have increased meds.

This week had to go back to gp as the pain has not

Been under controll and has spread to my left hip

And into my lower back, yet again another increase

In meds and awaiting a ct scan as he thinks the cancer

May be back and has spread to other parts ,

I'm so scared just don't know when it's going to end.

Parents
  • Hi all

    Well it's been sometime since I updated you all

    As many of you know I have been fighting my hospital

    To change to new hospital, well finally I got to see my

    New doctor on Thursday,

    After 1 hour consultation ( unlike the 5 mins I used to get)

    I'm being sent for some emergency scans, he said

    That there is a big chance that the CANCER is returning

    And that's why ive got so many problems with my leg,

    My mobility has decreased, my leg now goes cold

    Completely and turns blue/ purple and pain increased.

    They are also going to scan my hip and lower back cos

    I'm having pain there to. As you can imagine I'm worried

    And scared of what the out come will be? Or am I gping

    To be left like this for rest of my life.

    I asked if he had a plan but he didn't want to go into

    Detail till results are in, so now yes it's a waiting

    Game and another roller coaster that never ends.

  • MLS, I have been reading up on your latest posts and my heart goes out to you. You are sure having a tough time of it and going through so much pain from your disease, but also having to deal with a health care system that doesn't always put the patient's needs first. As if you didn't have enough struggles, you needed to use your energy to try and get someone to help you. I hope now that finally, someone appears to be on track with getting things done, that you will get the services you need so that you will have some quality of life. As both Max and Jules have said, come on here as much as you need to, and you can rant and rave all you like; you have earned the right to do that. Let us know how you get along with your new doctor, and the results of your latest scans.

    Take care and hugs to you from me.

    Lorraine

  • I'm so sorry to hear that. As you well know, the waiting is always tough but I hope the doctor comes up with a treatment plan soon.

    Debbie

    X

  • Unfortunately after a trip to gp yesterday

    I spent the day at the hospital being accessed

    As I had heart failure last year due to heart

    Condition which I didn't know I had,

    When I went gp cos I thought I had high bp

    With symptoms I got a shock high it was

    And spent 9hours in assessment unit

    Untill I ended up leaving as there was no

    Rush for them to see me after 9 hours of tests

    Seeing just bio ur and waiting 5 hours to see

    Consultant that never turned up.

    Will see how things go, this CANCER has

    Started to take its tole on my body .

    Hope you are all well and have a lovely weekend.

    I plan to spend quality time with my beautiful

    Who I love so much.

  • Dear MLS,

    What a lot you have been going through.!!!

    I am so sorry that not only have you suffered with so much pain and discomfort you have suffered with the negative side of the NHS.

    I do hope you get some quality care from these people soon and as you say have a plan in place.

    The weather here today is awful (strong wind and rain) but I hope it is better with you and that you are having a lovely weekend with your family.

    Keeping fingers crossed for your improved  future care.

    Hugs

    Annabel. xx

  • Hi Annabel

    It's so nice to hear from you, how are you doing?

    Here is the same we had some sunshine but very

    Very strong winds, so spent the day at home

    Getting things ready for my children back at school

    Tomorrow, my little girl had homework of reading

    And writing, she is very good for her age and loves

    To learn and discover new things.

    Takecare Annabel hugs xx

  • Hello MLS & all the others in the chat room.

    I am new here but I have been reading all of your various posts.

    I go to the hospital in the morning at 9.00 to see the consultant for the 1st time.

    I am certain he will confirm I have lung cancer as the Macmillan nurse has already phoned me unofficially with the diagnosis.

    God Bless You All & Let Us All Pray To Our God(s) For A Quick Cure!!!

    Lots of love,

    Loftyloo.

    x x x x x

  • Hi loftyloo, welcome to this wonderful forum

    It's so nice of you to respond on my thread.

    I pray and hope that your Appointment goes

    Well and you get some answers .

    Takecare and will be thinkng ng of you tomorrow.

    Hugsxxxx

  • Thanks for asking MLS, I am well, just awaiting next  Checkup appointment in November.

    Then appointments should go 6 monthly if all is ok.

    Your little girl sounds just lke mine did at that age. They can be just like a sponge.

    Mine could not wait to read and so I taught her at the age of 3 and we called her bookworm.

    Still do ands she's nearly 32.!!!! LOL.

    Keep us informed of how things go .

    Hugs

    Annabel xx

  • Hi Loftyloo and welcome.

    I hope your appointment goes as well as it can tomorrow and that you come back with details of the plan of your care.

    Do come back and let us know how you are getting on.

    Good luck

    Hugs

    Annabel. xx

  • Hi all

    Just thought I'd let you know I've got my

    Appointment for my CT scan it's been just over

    A week now and my appointment is on this Saturday

    The 25th, I'm happy but worried what will be found.

    Hope all is ok xx

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