Hi Max, good to hear from you. I have seen some of your comments to posters on here, but I'm always reluctant to "crash" their pages with a post not geared especially to them. When I saw this one started by you, I was okay with jumping in, even though I know nothing about this treatment. I just wanted to touch base with you to let you know I've been thinking about you and wondering how you are. Like you, I hesitate to be fully open about my situation for the same reason. I certainly will try to track down your e-mail address so we can connect via that route. Take care my friend and I look forward to having a great "heart to heart" very soon.
Thank you max, I will ask at the hospital, I've been so poorly with a damned cough for 3 months now and now they've decided this is cancer too after three lots of antibiotics, and it's on my chest wall where I have no breast, I know they have to try and I'm such a positive person but it's starting to fail now, wish you well and as everyone keeps telling me " keep fighting " x
Jodi ...... guess you are like me and sometimes feel like strangling those people who keep telling you to 'keep fighting' haha! I am sorry to hear about your spread to the chest wall - it must have been a huge shock to you. Somehow it hit me harder when I had a recurrence - I dont know how you felt? Guess you are so full of hope following your initial treatment and it just brings you back down to earth with a huge bump! Have any other treatment options alongside chemo been discussed - like surgery or targeted radiotherapy? I really have no knowledge of chest wall disease, my mets has been in my liver, brain and nodes around the collar bone and abdomen. Have you a good support network around you Jodi?
Yes it was a terrible shock to see the lumps on my skin when I thought it was a bit of infection, couldn't stop sobbing all weekend especially after seeing pics on internet and seeing how horrible it can get, and it's so common too, nobody has ever mentioned it's possibility , I've got a fab family and terrific friends, and they all offer their love and support, but nobody can truly realise I'm not going to be cured now, they don't understand paliative care x
I hope you find that the TDM1 is side-effect free for you and that it does its job well. New procedures and drugs are becoming available all the while so we must never give up hope of living a very long time with this disease Jodi. Am always here if you need a rant and please let me know how you get on with your new chemo x
