Is anyone on T-DM1?

I am starting the above drug next week and wondered if anyone is on it and can tell me about side-effects, effectiveness etc. Thank you x

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  • Hi max56,

    I hope others with experience of this drug will come along shortly to share it with you. In the meantime, correct me if I am wrong as I am no expert but it looks like it is also called Trastuzumab emtansine (now that's a mouthful!). We have a page on Cancer Help about it which you can read here and it lists the common side effects experienced. Don't hesitate to ring our lovely nurses too (freephone 0808 800 40 40) if you want to find out more about it. But there's nothing like personal experience and so I hope others will pick up your post and share theirs with you!

    Lucie

  • Hi Lucie and thank you for that.  I believe it was only released in February and is a mixture of Herceptin (Trustuzumab) and a drug called Kadcula, thats what the oncologist told me anyway. He says it attacks bad cells only and the Herceptin goes to the cell and then the chemo drug targets it. Think thats how he explained it anyway. Hopefully the side effects shouldnt be too bad, fingers xd.  Thankyou - I will have a look as suggested

  • You're welcome and fingers crossed it works well for you! If anyone has tried this drug, thanks for sharing your experience here!

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