CIN 3 and HPV

In March 2013 I had a regular smear test which came back with high risk HPV and mild dysplasia, I had a colposcopy and biopsy, with results stating I had CIN 1, on the 17th November 2013 I had my follow up colposcopy and smear test, today I got results which state I have severe dysplasia and have to have treatment in a few weeks, the Dr advised this is not cancer and she doesn't think it will be either. Just seeing whether anyone else has had these results and treatment and whether the treatment was successful, I am having treatment done under local anaesetic also- I also one day want to have children but today with these results this seems a long shot now, I am 28 years old and this has gutted me and hope that I could maybe get a bit of reassurance and advised of anyone going through the same thing.

Kayleigh

Parents
  • Hi Kayleigh,

    Please don't get too down hearted. I know this is an awful and scary time for you but I have been through a similar experience, although mine was HPV with CIN 1. I had laser treatment to clear the pre cancerous cells, this was done under local anaesthetic, it took minutes and I was fine within a few hours afterwards, just a little cramping and bleeding.

    I too was worried about pregnancy but I since had a baby without any problems. Remember that this pre cancerous cells which could turn to cancer but would take 15-20 years to progress that far - so I was told. You will be having treatment to prevent these cells becoming anything more serious and it doesn't mean pregnancy can not happen and there are procedures that can help with that when the time comes should you experience any problems in that area.

    Keep your chin up. When it's all done you'll wonder why you were so worried!

    Nicola xx

  • Hi Nicola

    Thanks for the reply, I actually got my appointment for the treatment yesterday so at least I know in 9 days the cells will be gone, I had the cin 1 in May and they left me for 6 months and then it's turned to cin 3, it was such a shock that it had gone from 1 to 3 in such little time, and yeah I am looking forward to the day I can look back and think why did I worry so much, I haven't been able to be positive about it yet but I only have 9 days to wait now until the treatment!!

    I've never from day 1 understood the hpv, how long ago did you have the treatment? And has everything been ok since??

    Regards

    Kayleigh

  • Hi Kayleigh,

     

    I'm 25 and this is my first smear/colposcopy. I've had my first one and then they said someone my age can had 50/50 chance of changing and not having surgery.

    my biopsy showed I was CIN2 which is why they let me wait, but now I'm due back and i it's saying for a check up and then if needed discuss pre op. So I'm assuming this would be LLETZZ. Just wanted to know if I'm to expect worse from a dentist like you said. It's harder as have to go on my own due to covid l-19. But just wanted so reassurance really. Gosh it's all such a worry. X

     

    thank you 

  • Hi did you go for yours

    i had letter today abnormalities CIN2-3 

    it was only 6 months ago it was slightly abnormal with HPV High

    now this and I'm worried 

    is there any nurses advising me pls on here I'm beside myself 

    going in in two weeks for the LOOP think that's laser not sure 

    can't stop reading internet ‍♀️ ️

  • Hi Maxmill, 

    I just wanted to wish you good luck with your LOOP and let you know that our nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to discuss your situation with them. You can also make a post in the Ask the Nurses section of the forum.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Thanks for your comment 

    does this mean I could have cervical cancer having CIN 2-3? And high HPV?

  • Hi maxmill

     

    CIN 2-3 are NOT cervical cancer..they are pre cancerous abnormal cells. High risk strains of hpv cause  most cervical cancers but having hpv does not mean you will get cancer. Not everyone with hpv even has abnormal cells, and most of the sexually active population carry the hpv virus. 

     

    Dr google is not your friend when you’re worried about something. It can make every symptom seem to be cancer! 

  • Thank you for your reply x

    So at this stage if I did have cancer they would know ? X

  • Normally you would need a biopsy to confirm cancer. Even though I had a tumour visible to the naked eye on examination, the gynaecologist did not confirm it was cancer until he had the results of my biopsies. Hopefully your treatment will simply remove the abnormal cells. x

  • Oh ok thank you 

    so I've had two biopsy one in Jan that was clear and one 

    recently this month and this is where it's come back CIN 2-3

    do you mean when they send off after my laser treatment ? Will that be classed as a biopsy ? I'm feeling so scared about all this x

     

  • Hi Maxmill

     

    Your recent biopsy has not identified cancer, just abnormal cells, so I would take comfort from this. I know it can be very scary but treatment should remove the abnormal cells before they have a chance to develop into cancer and then you would have regular monitoring. x

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