Does anyone know about Papillon treatment

Can anyone help with this please?

GrannieD

  • Hi again smashem63,

     

    Lovely to hear from you - I 'had' been wondering how you got on!

     

    Nice to see that things are going well for you and I hope they will continue that way.  Stay positive and I will expect another happy update from you again in another couple of years !

     

    Best wishes,

     

    GrannieD

  • hi Smashem63

    Thanks for reply .Great to hear you are well hopefully I will be in your shoes soon . My doctor is not offering me the 3rd treatment so hoping I’m cured with 2 .I have scan on Friday so time will tell .

    Hopefully you will remain cancer free for ever .

    feels me with hope when I hear positive news.

    kind regards 

    Justine 

  • Hi GrannieD,

    Yes staying positive...what will be will be 

    I will keep updating..good or bad .

    thankyou for your reply I have told my doctor I’m worried to which  he replied we do not know how many treatments are ever needed to cure you’ve had two treatments and said he was sure that the scan will show it’s gone but head is telling me I need the third feel I’ve come  all this way down the chemo done the radiation I just feel a bit let down but I’m staying positive 

    kind regatds

    Justine 

  • Yes, well look at only having 2 treatments as a positive not a negative. GD only had 2 so you're not alone. Once you get the results back from your scan, that will make things clearer for all concerned. Chin up :)

  • yes it was quite a painful experience 

    Thanks I’ll take that in mind .

     

    kind regards 

    Justine 

  • Hi GrannieD, I hope this message finds you well.

    I said I would get back to u after the 3yr milestone, so here I am reporting in.
    All checks have found no reoccurrence of the tumour or any others, so opefully this will continue to be the case for years to come. 
     

    M  

  • Thanks for the update and I am very pleased to hear that all is still well with you,

    Thankfully I can report the same after all these years.  I can't believe it all happened nearly 10 years ago for me so there is certainly hope.  

    To anyone in a similar situation - NEVER GIVE UP HOPE !

    Love to all who need to come on here,

    GrannieD