Can anyone help with this please?
GrannieD
Can anyone help with this please?
GrannieD
Hi,
Sorry, no I don't. Try posting on the 'Ask Nurses' part of the site, they may have more information for you.
Welcome to the site though
Rgds
Mel
Hi, yes I have had the Papillon treatment at Clatterbridge in August 2012.
What would you like to know?
Thank you both for your replies.
baggiesrich,
I went to see my professor last week and had my first treatment.
I have to have one more next week.
How are you getting on after yours?
GrannieD
I'm fine at the moment, my tumour is just scar tissue and I'm just coming up to 12 months after treatment.
I was diagnosed and told I needed a resection operation and a permanent stoma so was glad to find the professor at this hospital.
Me too !!!
I had an Oncologist for my treatment who was not good ! - He told me I had to have that Op. but the professor at this hospital was very approachable and truthful and I could trust him - That is very important !!
I have my second (and final) treatment next week so we will see what happens.
GrannieD
Hi GrannieD
I know this is an old post of yours back in 2013, but hopefully you will still be able to give me some advise on your experience with the papillon treatment you had at Clatterbridge especially with how effective it’s been for you to date. Thanks.
Hi there,
What is it you would like to know?
As you can see, I had this treatment 6 years ago now and I have had no further recurrence of the Cancer so far.
GrannieD
That’s what I wanted to hear. I find it so difficult getting feedback from patients who have undergone this treatment. A fantastic result for you & proves it does work. Thanks for replying as I have the same journey in front of me with hopefully the same resultts. Is there anything you would advise me of?
I wish you luck with the treatment and don't worry too much about having it done - it is far better than the alternatives !!!!!
I am not sure what to tell you - We are all different and the treatments all act differently with different people so any side effects and end results will always vary.
I assume you are being treated for bowel cancer? - I think this treatment can be used on other forms of Cancer too but mine was bowel cancer.
Have you been seen at Clatterbridge yet and if so, who did you see there and how many treatments did they suggest?