Rectal cancer surgery

Hi everyone,

Thought I'd post my latest update in this topic area as oppose to tagging it on to my thread in the 'Introduce Yourself' area.

I saw the Colorectal surgeon today for the results of my scans and the next step with regard to surgery.

He told me that the radiotherapy and chemotherapy hadn't shrunk the tumour as much as he'd have liked, but sufficiently to still operate.

An added complication was the fact that the scan also showed that I have a tennis ball sized fibroid in my uterus, which will hinder the surgery, so I will have to have a hysterectomy too ; gynaecologist in first, colorectal surgeon next - like a tag team! ( I may sound flippant, but I am struggling a bit with all this!)

Also have to have my cervix removed and top end of my other lady bits! (Sorry to the men reading this!) (Scan showed I also have gall stones and cysts on my liver! But these are not a problem!)

I listened to the list of 'parts' the surgeon said he was going to remove, wondering if there'd be much of me left!

I looked down at my body and said " It's amazing how much is going on in there!" Bear in mind I'm the size of Kylie Minogue! He did say I made his job easier by being so slender!

He'll take out a section of lower bowel and join it to the the section of rectum that will remain after he's taken the tumour out of there!

I'll have an ileostomy (as correctly predicted by Beaker) which may or may not be reversible in a few months time. And I may need more chemo after surgery; this depends on the pathology report on the section of bowel that will be removed.

So . . . We're now planning a 'pre-op' holiday (the hospital have kindly organised a pre-op assessment for tomorrow so that we can go anytime between now and the operation on September 17th.)

Another 'bright side' moment; when I was diagnosed and had my treatments, my lovely colleagues wanted to do something to support me other than the usual flowers and cards. so they have organised a sponsored walk to raise money for the local cancer hospital where I had my radio/chemo and it's due to take place on September 15th, and I'll be able to go along and add my support!

So many positives, but still can't help feeling a bit all over the place! All aboard the cancer roller coaster eh?

Hope everyone else is ok?

Love to all, Meerkat xx

Parents
  • Hi Meerkat,

    Found your new thread after you replied to my post on your old one (I'm new to all this too!).  Poor you facing considerable surgery, but your medical team sound like they really know what they're doing. Must be strange to think about losing so many bits, but think of it as being a few pound lighter!  (Doesn't sound like you need to be though).  You will no doubt need plenty of time to recuperate so make sure all your loved ones give you a massive pamper package, and keep your laptop at hand to post on here.  Great that your friends are doing a charity walk, I have been threatening to do a charity run for my local hospice since Dad died, they've helped me so much through this terrible time so I definitely will do it in the future.

    I am at an "acceptance mode" regarding my Mum at the moment, so am making the most of it as I know much darker days to come soon.  I can't believe that I find a chatsite helps, I never thought it was me!  Thank god for the internet eh!  Take care and keeping posting your virtual friends.  Hope23 x

  • Hi Hope,

    Glad you've found me here! I'm going to 'cut and paste' your sentence about my loved ones giving me a massive pamper package and leave it lying round the house in various places . . . Maybe with a few ideas as to what constitutes pampering (for my partner!!! Say no more!)

    It's good to read that you're going to do a charity run, some time in the future, for the local hospice who cared for your dad and who have helped you too.  I'm sure it will be a 'mixed emotions' experience when you run it, but hopefully an uplifting one, doing something in your lovely dad's memory!

    I'm glad you're finding the chat site such a support and you are certainly doing your bit to support all of us out here! Even though you have said you know darker days are ahead, I'm glad you are making the best of the way you feel at the moment.

    Stay strong, lovely Hope,

    Meerkat x

  • Thanks so much for replying before going to scotland.

    I have to admit to being guilty of exactly the same as you because I no longer live in North Wales and now regret not seeing more of such a beautiful part of the world.  I have never even been up Snowdon and I lived not thirty miles from it.

    I am off next week too and I'm afraid I have seen the forecast, for London anyway, so I will be packing jumpers and a brolly.

    I look forward to tales of whisky and shortbread when you get back but I will let you edit out the bits about the haggis.

    Have a great time and a safe journey.

    Garf. x   

  • Hi there Meerkat,

    Lovely to hear from you too.

    Didn't answer you straight away as wasn't sure exactly when you were off to Bonny Scotland.

    I think you are doing exactly the right thing in not getting on an airoplane just now with all that recycled air and catching anyone elses bugs before your surgery.

    As for the sunshine it's not always necessary, and sometimes you can chase it, just need the pro weather app on your mobile.

    like you I am a keen gardener but never seem to have enough time to garden, and having 2I/2 acres and a business to run means I do what I can but some of ours has to be as nature intends.I do have green fingers and often have new plants from old in pots but it's become such a disease with me that I think I should start selling plants to our guests.!!!LOl. 

    I have to say I envy you your chef, it's one thing I have lost interest in over the years is cooking. Used to be quite good at it. Now it's just a neccesity.HE HO.

    Oh well, have a lovely time in Scotland (I love scotland) and we will chat when you get back. I'll be here for you.

    best wishes

    Annabel.xx

  • Hi everyone!

    Hope you don't mind if I write to you all in one group message?

    Firstly . . . .HUGE Congratulations Grandma Annabel! I look forward to hearing more about names and weight etc! Hope your daughter's feeling ok too!

    Well, we're back from Glasgow where we enjoyed fantastic weather! We went to Celtic Park on the Sunday to watch a charity match for Leukaemia research. One of Celtic's players (Stilyan Petrov) was diagnosed with L and so this match was arranged with 'old' players and celebrities playing against each other. A brilliant, but emotional afternoon!

    We went to Largs on Monday and enjoyed chicken and chips on the beach! And then my partner had a knickerbocker glory to finish off! It was called A Flying Scotsmen as it had everything that you associate with Scotland in it . . .  Except Haggis!! The sun shone and we had a lovely relaxed day!

    Tuesday saw us heading off to Braehead . . . A massive shopping centre! We didn't do much shopping, but went on a 'date' to the cinema to see About Time (new one from Richard Curtis) a bit of a chick flick, but the message within the film is certainly one we can all relate to on here, about making the most of every day!)

    We headed back home on Wednesday and had intended to visit my partner's daughter and grandson on the east coast, but unfortunately, things conspired against that plan happening, so we just came home!

    It was great to spend some time without thinking about being ill! And the Scottish air plus all the walking we did, certainly helped improve my sleep pattern!

    Only one slight downer though. . . I've come back with a sore throat and swollen glands! Ah, the irony of it! we didnt go abroad so that I didnt risk getting airline flu! Still, as long as I'm ok for Tuesday! And some vitamin C tablets and paracetamol seem to be doing the trick!

    So, the past few days have been spent sorting out last minute things ready for next Tuesday's admission and that includes logging in to see how you're all getting on. I can see that you've all been doing what you're all so brilliant at; supporting each other and any newcomers! I hope to respond individually on your various threads over the next few days!

    Well, it's time for dinner . . . I'm making the most of eating lots of food before Sunday when the 'low residue' diet becomes compulsory!

    Wishing you all a peaceful and happy weekend, folks! (I'd like to say sunny too, but looking at the forecast, I think that's asking a bit much!)

    Take care, Jo (Meerkat) xxx

  • Hi Meerkat,  I was thinking of you earlier and wondering when you were back, had intended to post you over the weekend as I guessed you'd be back by then.  So glad you had a lovely time in Scotland, and wonderful that you got to do so many lovely things without thinking about illness.  I want to wish you heaps and heaps of good luck and best wishes for your forthcoming operation on Tuesday.  Don't forget about the "pampering" afterwards, I'm sure all your friends and family will spoil you.  Also hope the charity walk that your friends are doing this Sunday goes will, fingers crossed for good weather.  Please try and keep in touch with us all on here, this site has helped me so much.  Take care.  Hope xx

  • Hi Jo,

    So please to hear you had such a good time. I must say we have all missed your input.

    I wish you all the very best for Tuesday and will be thinking of you. Please take good care of yourself, best wishes, Brian.

  • Glad you are back safe and sound from your trip to Scotland.  Also glad that the Flying Scotsman you had was missing some Haggis. - YUCK!

    It seems we both failed to do any shopping while on our trips.  As a fan of Formula 1 and McLaren I just didn't find the time to go to the McLaren store in Knightsbridge as there was just too much sightseeing to do.  It's probably just as well as it would have ended up being an expensive visit. I did need to buy some plasters for the blister on the bottom of my foot though.  I knew I should have taken different shoes.

    I just want to wish you all the very best for Tuesday and to let you know my thoughts will be with you.  Please, please come back here to let us know you are o.k. and how the operation went.

    GOOD LUCK!!!!!!!!!!!!!!!

    Garf. x   

  • Hello Jo,

    So lovely to hear from you. It sounds like you had a great time up around Glasgow.Are you telling us you were good and didn't have a knickerbocker glory with him. ( Can anybody tell us why it's called a knickerbocker Glory???)

    Anyway I hope you are feeling rested and at least you have been away. I am sorry you've come back with a sore throat. Gargling with a good mouthwash just might help that before Tuesday Jo. ( Sorry it's the Nurse in me, still comes out sometimes). I have to say I love Scotland and was up in Dumfries the other week but then I don't live far, being in Cumbria.

    Thank you so much for your congrats at me becoming a Nanna. It was such a shock as she wasn't due for another 4 weeks . Anyway they are both fine now, My daughter had to have 4 units of blood transfused today as she had quite a bleed at the end of the process. She is feeling a lot better now and able to get up.

    Well I hope you enjoyed a lovely meal this evening Jo before the low res diet tomorrow. Have a peaceful weekend Jo. I shall wish you well for the op next week.

    best wishes

    Annabel.

  • Hi Jo,

    I have come as promised, to wish you all the best in the world for your operation tomorrow  . Bet your sick of the low res diet already.

    I shall definately be thinking of you tomorrow . Let us know how your getting on when you can, will be lovely to hear from you.

    Grandaughter weighed 6.3 lbs at birth and although a little preterm they went home last night after she had had some uv therapy. Haven't spoken to my daughter today yet as I have been working this morning. So will catch up with her later today.No name yet but I don't suppose it will be long.

    Hope you are feeling as calm as you can. There comes a point where you just have to put all faith and trust in these people and let them get on with their job.

    You'll be in the post op ward before long.

    Chat soon

    Hugs

    Annabel. xx

  • Hi Annabel,

    Thank you so much for your lovely, kind wishes for tomorrow. Yes, the low residue diet has become boring! It's amazing how everyone else's plate looks so appealing with colourful vegetables on them! 'White' food certainly is as bland as it looks!

    Today, I've been preparing myself, practically and mentally for tomorrow. Keeping busy practically has been easy, but the mental preparation has proved more difficult! I can't help feeling a little bit anxious about tomorrow; from "Will we get there on time?" to "Will the operation be successful?" However, there comes a point when you just want it to be done so you can get on with the next chapter of the story! And this is where I'm at!

    I love reading about your new granddaughter. So glad your daughter and baby are back home now. Did I see in a post to Jules or Hope, that you'll be skyping? Technology is fantastic! We keep in touch with my partner's daughter and grandson via FaceTime (they live up in Fife)

    Well, as I said to Hope, I'm going to have a bit of a self spa! Mainly to relax, but also to keep out of the way of the kitchen where delicious food is being prepared! Not a hint of anything white in sight!!! Grr!

    I look forward to logging in, in around ten days to catch up with your news. And no doubt I'll see your supportive messages dotted about the forum too!

    Thanks again, Annabel, and you take care of yourself too and enjoy skyping and 'real time' with your new addition!

    Jo xx

  • Hi Meercat Just wishing you all the best you will be in my thoughts

    Ruggles

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