hello nicola, first of all the most important thing is staying positive,yes there are horror stories out there but the number of people ive meet over the past 6 years with the same condition have come through it to lead a near normal life ,obviously i understand your concerns especially as you have a young daughter ,which is why i suggest not to hide your symtoms,the more people that now will be able to help you when you need it, true its going to be a rough ride the next couple of years but you can pull through this, if theres any info on what the proceedure is for the op or the possible follow up treatments after please let me know , i was stage 4 tongue and lymph in neck ,im 6 years post op and although at times its been difficult im here and doing my upmost to lead a normal life again ,you can too,please let us all know how things go all the very best x

Dear All

Finding it hard to have to be posting here at all but my husband is waiting for treatment for tongue cancer, surgery at least (including some lymph node removal) and then maybe radiotherapy if he needs it. I'm focusing very much on practicalities at the moment... he's a teacher so speech is important to him, how long in your experience before he might be able to get back in the classroom? Should he be thinking after Christmas or longer (assuming things go well). What impact would radiotherapy have on his speech recovery?

Thanks :)

I will definitely come back when I have my results.

Thank you x

Hi Jamie

Sorry to hear you’re worried, fingers crossed it will be nothing. The biopsy is sore but not too bad.

i know what you mean about worrying about not seeing your children grow up - my baby was only 7 months when I was diagnosed last May. I’m 39.

I’m doing pretty well now. Finished my treatment at end of August, I was back at work part time in October and full time in December, I was eating almost normally by early December too. 

Good luck and I hope it’s nothing, but if it’s not you’ll gave it and find lots of support here. 

Hi there and thanks for the reply I'm glad to hear that you are doing well and it's nice to hear. It may be nothing but I'm preparing for the worst and anything else is a huge relief. My lump is on the front left hand side of my tongue and bleeds occasionally. It's been there for a few months now. Thanks and yes already appreciating the support 

My husband had a 90% removal and reconstruction of his tongue. He had a neck dissection. It had purged the lymph nodes not pierced but due to this had Chemo and radiation. I was able to keep his weight up enough by pureeing every meal and him drinking Scandi shakes for calories. He had a scan 3 months for the first year and then 6 months for the last 4 years. He saw surgeon and radiologist every 6 months. He will be 5 years post op in April and happy to say cancer free. He still has some speech issues but nothing terrible. Keep the faith and family and friends support it helps in ways you don’t even know.praying everyone has the outcome he had. This forum was very helpful and scary all at the same time while going thru the stages.

Glad to hear you're husband is doing well. I had my biopsy today omg they jags into the tongue hurt. Just need to wait for the results now and hope and pray there ok

Hi Carol, 

Hope you don't mind me replying to your chat. 

I had surgery 1 month ago and had a partial removal and a flap from my forearm. I am generally recovering well. I don't have to have any further treatment thankfully but just have a couple of questions and thought you may be able to help?

I wondered whether you had a sore throat after surgery? My throat has just started being sore and I'm worried its not normal. Also, how long did it take for the tongue to settle to it's natural size and how long did the swelling take on the neck to go down? I don't know if I am expecting too much too soon!! 

Hope this is ok I am asking. 

Best wishes

Catherine 

Hi Jamie, did you get your results? 

Hope you are ok x

Hi hope you don't mind me replying I'm six months in from partial tongue and lymph node , and I'm still having few issues but it is getting easier I'm back at work , eating still difficult but I'm just pushing myself to keep going.  All sounds like u are going in right direction , my throat was sore gir a while but I suppose prodding and poking in there did not help , keep going and hoping it gets easier gir you   But it's hard and I totally understand   I thought it would be so easy so was shocked how hard it's been to get over this sugery and how I'm still not 100% but I'm alive and well and tha means everything xxx

Ah thanks so much for your response!! It is so much harder than I I thought too and it's really shocked me!! Sounds like you are doing great though and will try and do the same! Xxx

Keep going good days and bad , I still have a few , but I know the light is at end of Tunnel , I don't think we actuslly realise the sugery we have had done and how major it is , I'm a person that just always says it's only this and that , but I must admit this time I'm now realising it's just not that easy , sending love and all my strength to you too keep going x

Keep going good days and bad , I still have a few , but I know the light is at end of Tunnel , I don't think we actuslly realise the sugery we have had done and how major it is , I'm a person that just always says it's only this and that , but I must admit this time I'm now realising it's just not that easy , sending love and all my strength to you too keep going x