Hi all

I have just caught up with all your news and it's great to hear that everyone is progressing well.

It is also really nice to read posts from people who had similar 10+ years ago. Makes sure we all stay positive! Hopefully those embarking of this journey, will also be buoyed by this.

When I  was catching up with everyone's news, it was nice to read that Nicola and Jo were going to have a look on another site to see how I was doing. Thanks, girls!

I'm doing fine. The brain op was a breeze compared to the cancer treatment! It's now 5 weeks since the op. My second eye has now opened and I'm not so tired.my hair is growing over my scar do eventually it won't be seen!

i have a question for you. I've got my 12 week cancer check next month. Do you think I can have the usual tube up the nose after my op? I doubt whether I will ever get hold of Kings to ask!

Love

debbie

x

Hello to the gang!

I felt the need to post on here today as its exactly two years ago today that I received my tongue cancer diagnosis and almost two years since I started this thread. I know I'm very lucky to have come through it and I'm proud of all I have achieved but 14th August is always going to be a hard day for me :( I didn't think it would be this year but it's still only early in the morning it's already been playing on my mind a lot. It's silly really but I remember every detail about that day, even what I was wearing and what music I was playing in the car that morning! 

Anyway, I hope all is well with everyone, and Vatch you are right when you say we all get on with enjoying life so we don't feel the need to come to this site as much anymore, that's exactly how it's been for me but I'll  always remember the great support this place has given me :)

I hope we can all catch up again soon in Liverpool! Xx

Wow Nicola, 

There are some anniversaries that none of us ever forget! I remember your first post on the forum and can't believe it's two years ago. You've really come a long way in that time (sorry for the over used cliche! ;) ) and your thread has helped so many newbies along their road too! It's been great to hear about your progress and share the highs and lows with you along the way! x

I hope your Liverpool meet up is soon sorted and you all get to enjoy a plate of Scouse with a pint of whatever the local ale is! ;)

My son is moving to Widnes next week, so I'm hoping to pop into Liverpool for a look round. It's not a city I've visited before. 

Well Nicola, take care and pop back on every now and again to let us know how you're doing. 

Big hug to you and all the other friends on the thread! Jo Xxx

Hi Nicola and the rest of the gang!  

I haven't logged in here for a while (absolutely spot on what Vatch was saying) and how telepathic that I should choose today to visit, when it's the 2 year anniversary of your diagnosis Nic (I've seen today's FB posts so had no idea!).  How right you are that significant dates will stick in our minds forever.  My diagnosis was Halloween 2013 - now there's a spooky date if ever there was one!

Great to read on FB today that Vatch and Claire are celebrating Gary's 1 year post-treatment today.

Not sure if I told you before, but I've been involved recently in a Focus Group for a new study up here run by Stirling Unversity - a Swallowing Intervention Project (SIP) for Head & Neck cancer patients.  It's really fascinating and interesting and I sincerely hope it might help some newbies in my neck of the woods to persevere with some pretty painful exercises which hopefully will be of huge benefit to them.  

Not sure if I mentioned it before but at my last SIP meeting several folk were advocating Manuka honey for combatting dry mouth.  I have to confess when I saw the price of about £10 per jar I didn't bother to try it.  Last night at a second focus group meeting 2-3 folk said they had picked up on the previous recommendation and had found a substantial improvement, so I'm going to give it a whirl (£4.30 from Aldi cf about £10 in Tesco).  Not sure if it's too late to try the exercise regime too, but I will give them a bash and keep you posted if I think they are beneficial.  A couple of them are certainly pretty challenging even for those who haven't had RT, let alone folks who are going through it.

Jo and Debs - lovely to see you two still dipping in here - love to you both xx

Rozdog - good to read that  you are doing well and still visiting the site.  Would be great if you can join our next get-together (Liverpool?).  You too Jo via Widnes?

Love and hugs to all.

Irene x

Hi Nicola

It's great to read about how you are doing two years on.

As Meerkat@65 has said, your thread has helped so many travelling a similar path to you.

How nice to see you as well as other members of 'the gang', including Vatch and lsjheatherlea11 returning this week to share positive news.

Best wishes

Jane 

Hello all of you lovely people in the tongue cancer thread,

I am just popping in to let you know we have a new person on the forum who just got diagnosed with tongue cancer and who I am sure would love to hear from any of you. I mentioned your brilliant thread already but you can also find chopsy1's story here and share your experience there too if you wish.

Many thanks and I hope you are all doing well,

Lucie, Cancer Chat Moderator

Thanks for this Lucie

I am sure we will do our bit

Vatch

Ok folks someone else who needs a little help and advice

www.cancerresearchuk.org/.../tongue-biopsy-0

Hi everyone, 

I hope everyone is as well.

I just wanted to say thanks so much to everyone who supported me this time a year ago, this time last year I had just been told I had cancer of the tongue and did not know what was waiting for me.

A whole year has now past and thankfully im on the mend, without your help in the early days it would have been far harder. Time goes by so quickly.

I value life more now and plan to make the most of it, I hope to travel to a few places and try out some new things.

Thanks so much to you all, I will be forever grateful.