Tongue Cancer - Diagnosed two days ago

Hi, I am a 32 year old single mum to my two year old daughter and I found out two days ago that I have tongue cancer.  I'm waiting for an appointment for an MRI scan and a CT scan which should hopefully be within the next few days and this can find out if the cancer has spread.  I then have to have an appointment to discuss a treatment plan but I have already been told that this will involve cutting out the lump in my tongue and a neck dissection to remove Lymph nodes.

It's all such a lot to take in and I'm trying to come to terms with the fact that in a few weeks time my life will never be the same again.  I have read some horrific stories about what I have to come and I am willing to face any of it so long as I stay alive for the sake of my daughter.  I have only told my parents and one friend so far, no piont telling everyone until I have more facts after the scans but I'm concerned at how far the cancer could have spread.  I have had this painful lump on my tongue for six months but the doctors kept giving me prescripotions for other things which has delayed diagnisis.  I have also had pain in my throat and more recently I've noticed ear ache and jaw ache and neck pain.  I'm trying to stay positive until I know more information from the scans but I know I will crumble if it has spread beyond repair.

From reading stories from others on here and other websites, I'm a little confused that I haven't yet been told what stage the cancer is at.  Isn't that something that could be identified from my biopsy?  How could the doctor be so sure that I will need a neck dissection before knowing what stage it's at?

None of this has come of much of a surprise.  I googled my symptoms of a persistent ulcer back in April, before I first went to the doctor and was alarmed to see the word "cancer" everywhere I looked.  I had all the symptoms but was just hoping I was wrong.  The first two doctors I saw about this reassured me that it was nothing more sinister than an ulcer, which put my mind at rest a little, how wrong were they?!  I am just glad that I stayed persistent and kept going back to the doctor about it.  I don't think they treated it as an urgency as I don't fit in with the usual risk factors, I've never smoked, I hardly drink and I'm not in the right age bracket.  I'm now feeling annoyed at the waiting game.  I want to know when the scan will be.

It helps to come on here and read other threads but I still don't think it has fully sunk in yet but when it does, positivity for the sake of my little girl will just have to get me through.  I would love to keep hearing stories from others or any advice would be greatly received.

Nicola xx

  • Simon, hope the bone resolves itself mate. I've just finished week five. Still eating with co codemol and started on Ora morph in evening. Taste going a bit but managing to maintain weight. One full week and four days left although I know things can get worse for a while afterwards. Still got saliva and I know people have had a lot worse. Keep in touch mate. G.

  • Hi Guzzle,

    Well done mate. Sounds like you are coping really well - far better than I did. By week 5 I had been hospitalised via A&E twice, couldn't talk and had just about gotten to a 'nil by mouth' situation. You're obviously some kind of Superman!

    Not long to go now.

    Simon.

  • Simon, just lucky so far but throat is getting sore and pain meds required to eat. From what gather this will get worse. Fingers crossed mate!

  • Hi all

    Glad to hear that you are all doing well. It seems crazy that you are still waiting for your peg removal, Nicola, when you are now eating. Glad to hear that you are managing wine!

    Guzzle, you are doing so well. You haven't mentioned phlegm - is this not a problem for you? By the stage you are at, I couldn't talk because the phlegm was so bad. I was like something out of Alien foaming at the mouth!

    Simon - you have progressed exactly the same as I did (although I didn't have the night sweats). Don't worry I'm sure you'll be back on the spicey stuff soon. I was out for a curry with the girls last night and, at one stage, I thought I'd never be eating it again. I'm sorry, Irene, but I can't guarantee the same for chips as I still find them too dry. I can't quite take my Scouser husband's advice and have gravy with them!

    Keep going - you are all nearly there!

    Debbie

  • Deb , get a bit of phlegm in morning but not terrible yet touch wood. Your husband is a wise man. Try chips and mushroom /onion gravy. Its a post pub delicacy. I think my taste is going a bit and things are blander. Managed slow 3 mile jog this morning. Delighted you enjoyed a curry. You able to enjoy a sly beer etc yet? Regards, Gary.

  • Hi Guzzle, I'd forgotten all about that Phlegm scene ! When I had it I used to find that very lightly salted warm water would cut through it for a bit I remember Deb having it bad ! You sound like you're doing fantastically well mate and Deb you're sounding positive and really good . I found Guinness was the drink of choice for me :-).

    Keep at it mate !

    Ferry

  • Ferry, would live a guiness but am terrified what it would do to me on painkillers! Could end up getting stomach pumped! Looking forward to a beer when through treatment. How long did it take you to get off painkillers and sink a beer? Just had some prawns and taste Definately off (hopefully prawns weren't )

    Good to hear from you , G.

    PS when through and recovered going to have a trip to Leeds to meet access if you fancy it mate.

  • If I can make it mate I will, my son is going to Leeds uni if he gets his grades . I tried to stay off the painkillers as much as I could, didn't like what they did to my insides ! I was having the odd bevvy within about 2 weeks weeks of finishing treatment, I can remember sitting in the pub thinking I can't wait to get rid of this peg :-).

    Take it easy mate !

    Ferry

  • Yep! Not big on painkillers. A necessary evil to keep eating unfortunately. I would hope to be off them asap after finishing treatment and enjoying the occasional pint. This losing taste business quite unpleasant but Ill just keep shovelling the food in like fuel as little ng as I cab. Ive been lucky so far mate.

  • Diff lam oral rinse was what I had for my throat and tongue and I found it helped me loads, I also tried to have a little spicy food as often as I could and now I can deal with a fair bit of heat, not as much as before and nothing tastes quite the same anymore. But I'm still here thanks to the wonderful nhs !

    Ferry