Lost my Mam to Parathyroid Cancer

Hi,

I lost my Mam on Feb 18th to parathyroid cancer. She was only 52 when she passed after fighting for 15 months.

Its still really early for me. I cry but i also bottle things up. I cant bear to think that I will never see her again or hear her voice. I miss her so much. My poor Dad was with my Mam for 35 years. It breaks my heart to see him looking so sad. He was her rock, at her side everyday. He did an excellent job looking after her.

parathyroid cancer is an extremley rare cancer. It started with my Mams calcium levels been very high. Even after removing her parathyroid gland, her calcium was still high. The doctors had never seen it before, she baffled everyone. Even after removing the glands, her calcuim was still high and getting higher. Eventually they found the tumor and she had a 13 hour operation. She had 8 operations in total.

I have had some tests done as the apple doesnt fall far from the tree. My calcium levels are low...another blood test tomorrow.

This greif business is very confusing, its always there, as if she is sitting with me. I cry, then I'm ok, then I'm not, then I worry....Is this the new normal?

Are others aware of parathyroid cancer?

Kellie

  • Hi Kellie,

    I'm so sorry for you & your dad having lost your mum to parathyroid.

    I had a blood test yesterday and its showing raised calcium levels. I've been for another blood test today to check the levels again, I won't get the results until Friday.

    I'm worried sick that I'm also going to be diagnosed with parathyroid cancer.

    Any information about it would be gratefully received.

    Lisa xx

     

  • Hi Lisa,

    I'm sorry to hear your calcium levels are up.

    the cancer my mam had was very rare, she was a handful of cases in Europe! the doctors and Macmillan nurses had never seen a case of the cancer my man had. Try not to worry, it's easier said than done. It could be a number of things. My mam had an operation first to remove some glands. In her case, it spread and she had a tumour on her back. It's rare that parathyroid cancer can spread. She was diagnosed after a biopsy on the glands they removed and was meant to have radiotherapy 

    i read parathyroid cancer is linked to kidney problems but not sure how true it is.

    keep me posted and I hope it's nothing to worry about. I hope my message has put your mind at ease a little x