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Undiagnosed Pagets Disease of the breast.

penelopy
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Hi there ,I`m new to the forum .Over  4 yrs ago I had a bleeding nipple and puss from my it too.I immediately went to a breast specialist who said it was excema.I raised my concerns about Pagets and she said don`t worry it`s not!!So I listen.She did and ultrasouns and said I had a cyst in my breast.2 yrs later I went to the Nuttfield Hospital with the same concern .The consultant said don`t worry it`s just excema!!!!!

Where am I now in 2011Found a lump went to the ones stop breast clinic .Diagnosed with pagets disease and another malignant tumor and due to undergo more tests and a mysectomy.What and how far would this have possibly spread over the years .I am devasted but open to true answers.Incidently the breast nurse who examed me couldn`t even feel the lump which is even more worrying.I dirrected her and she still couldn`t and the mammogram showed nothing aswell,just when I reached a competent consultant and she did the ultra sounds and felt my lump did she realise the severity of it. I have been told to throw the guilt out the window,but the incompetence here is grave neglilgence.

Thanks

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    Hi Penelopy

    Ive just read your post from oct 2011,im totally with you on this i had a small cut on my nipple which would clear up go away them it looked like flakey skin this was only right on the end of my nipple . I went to the doctors as it didnt clear up totally had swabs done nothing all clear. Then went to breast clinic where i had a biopsy done straight away then was diagnosed with pagets of the nipple,i went on to have mammogram,ultra sound and and mri but was told nothing showed up on any of these no lumps at all !! it was  only the biopsy that  confirmed pagets.I have just had a mysectomy with the removal of sentenial node and biopsy of two other nodes.

    I would be greatful if you could give me any help with suggestions as feel rather lost at the moment  as there doesnt seem to be others around with this rare type of cancer.

  • Offline in reply to juju

    Hi Juju

    How are? I appreciate it's a good 6months or so since your post but I wondered how you were doing? I got diagnosed with Pagets disease last June, probably around the time of your masectomy - I had mine on the 30th June actually.

    I've written all about it and have met some lovely friends through the blog - http://adventuresofzomersetgirl.wordpress.com/about/ if you ever fancy a chat or a coffee - or an ernormous glass of vino (!) give me a shout.

    Hope everything has / is working out ok for you, stay strong

    Zomersetgirl x

  • Offline in reply to Zomersetgirl

    Hi Zomersetgirl

    Just wanted to thank you for your blog that i came across last week, explaining how you had no symptoms just a dry flaky nipple. It prompted me to see my gp and i am waiting to be seen by breast clinic on Monday. Fingers crossed it's nothing, hope you are well.

    With thanks

    Chezza2020 

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