Hi all.
Im new here, and say hi to everyone.
My 56yr old mum has recently been diagnosed with Splenic Marginal Zone Lymphoma. (SMZL) It is one of the rarer NHL's, therefore there isn't much floating about the internet regarding the disease to get my teeth into.
Her's is advanced, as it has been immediately jumped upon with Chemo and it has turned her spleen into a massive ball and her bone marrow is involved. Her specialst said that splenectomy isnt an option due to the bone marrow implication. So one form of treatment is immediately ruled out. She is currently on 2nd round of Fludarabine and Cyclophospomide. Side effects ahve been brutal in some instances and easier in others, she still has her hair for example albeit in a thinner form.
I would like to know if any others here have SMZL, and ask many questions. I would also like to embed myself eventually into this community and be a support to others going through this journey.
Kind regards