I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Poor Eileen like Dot I though you would get away without a hospital visit this time, must be the carbo which is affecting you bloods (?)
Glad the leaks are being sorted but its something else you don't need right now. Mines going well thanks, its so much chasos its easy to ignore lol. The first extension is up, waiting for widows wed then they can sort the inside. They needed to attach it to the roof and found the old batons were rotten and the felt torn in places, so they are replacing it, at the moment all felt in place (so it can rain if it wants) but no tiles! They rebuilt the front of the bungalow (don't ask) so have no radiators in sitting/dining room, I have a gas fire but they are removing the chimney so that will go to . The builder is trying to get his plumber friend to install radiators Mon . so its all go, total madness but me and my dogs are just ignoring it all. On a plus side no point in housework!!!!!!!!!!
Sorry to interrupt your lovely thread but I thought some of you might be able to help. We have a new lady on Cancer Chat who is awaiting results for ovarian cancer and has an appointment on the 28th regarding those results. She seems quite nervous about it and would like some advice on the kinds of questions she should ask at her appointment. Last time she had an appointment, she was too upset to think of questions to ask so I think now she wants to feel prepared. So far nobody has replied to her so I thought I'd drop you a line and see if you have any advice to give her as you have all been there and gone through that first appointment before and might be able to advise and/or comfort her. Anyway, you can read her story and, if you wish, respond to her thread here.
Jackie, I just read your post and wanted to thank you dearly for your brilliant response. You have really covered it all and I am sure your positivity will make a difference in this young lady's long waiting days. She will also probably feel less lonely knowing that all of you are here if she needs to talk so it was a great idea to put a link to your thread and your link worked very well.
Sorry again to have popped in your thread like a Jack-in-the-box but I thought it would have been a shame to leave her waiting and so anxious on her own knowing that you lot are so supportive and knowledgeable in the matter!
No problem pop in anytime! As we have all been living with this for so long now we tend to rely on the e-mail to tell us when to pop in, very lazy I know, but looking though main thread daily does take up time which is precious when its limited! So if you come across anything which you think we can help with plz do pop in and let us know.
Also thank you very much for the positive feedback, I do wonder at times if i go to far, its very hard to judge when its a personal response.
Thanks a lot Jackie - I completely understand you don't have time to read all the other threads and if I see anything like this again, I'll let you know! Dot agreed with me that your answer to her was very helpful. Thank you Dot also for replying and being so welcoming. You are a great bunch !
Sorry I've not posted for a while, trying to push it to the back of my mind I guess but its always there tapping away at your head.
Anyway, just found out it is on the move again - I finished my secound round of chemo back in June and I was really hoping for a bit longer this time but it looks like its not mean to be. Ca125 was around 10 but has gone up to 42 so waiting for scan then more chemo in January. They have mentioned another type this time - Genti something I think, I didn't quite catch the name. Does anyone know anything about it?
I know a few of you are in the treatment 'loop' and my thoughts are with you whether you are on chemo or off chemo, it is good to hear your experiences tho I always feel I've got nothing worth saying.
Sue I am sorry to hear that you are having problems again, there is a chemo called Gemcitibine but I don't know anything about it, I am sure there are others on here who will know. Seems we are forever on this treadmill, we have to have faith that 'they' know what they are doing and stay positive as hard as that it is.
I was due for bloods today but the strike stopped me going so I will try again tomorrow, then back to the hospital on the 6th for the results, I am hoping they will be clear but have felt a bit 'off' lol, could be just because I am thinking too much. Then straight on to the Lymphoedema clinic afterwards. We always seem to be in such an insecure position, always hoping for the best.
Ladies and everyone else, I hope you are all hanging in there........
Eileen I hope all went well with you today, big hugs
Jackie hope you are poodling along nicely, hoping because there aren't many posts on here that we are just dealing best we can.
I am on Gemcitibine/Carboplatine, I was on Carbo/ Taxol last year but have had 3 cycles of the Gem/Carbo. They usually give it with an hour bag of Carbo then half hour bag of Gemcitibine. The week after just the half hour bag of Gem then a free week.
Dot I did manage to get my scan today which was good as there was only a handful of people having scans. I go to clinic next Thursday so should have results. I hate the results day as you all know it is hard waiting to hear the Drs words. Anyway fingers crossed for me.
I hope everyone else isok and Jackie you are getting straight with the house. Mary, John, Sharon, and everyone else keep us updated.
Thanks for replying Eileen, its good to hear from someone having that type of chemo - how have you found it? are the side effects similar to the carboplatin/taxol treatment? usually by day 8 you are picking up again so does the second dose of it make you feel rough again. Sorry so many questions but my head is spinning and I'm not 100% sure that is the treatment I will have! Best wishes Sue
