I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Good to hear from you Dot, Maisie hope your feeling better or at least coping with the side effects.
I saw my onc Friday and have another 3 month reprieve! He showed me a letter he'd written 3 months ago saying he would review in 3 months but expected me to need chemo before that, he told me to keep proving him wrong (like I need that challenge lol). CA125 only up 20 from 3 months ago, if it dosn't suddenly rise I could do another year lol. Anyway feeling good, weather colder which suits me better despite having no windows at present! extension should get its roof Wed, and the windows should go in Wed which at least means we get the living room back for a while!
Hope your all doing OK, waiting to hear from you Eileen!
Hi Jackie , Dot, Sharon, Maisie, John & anyone else I forgot to mention,
Jackie that is brilliant news I am so happy for you.xxx How is the house coming on? I hope it's not too much of a mess and I really don't know how you are coping with it. Your very patient. I have decided to stay on renting my friends house as I was sick of looking at places that just didn't do it for me. I should have rang Kirsty & Phil ha ha.. Anyway I have been painting and moving boxes from one place to another. I have ordered some blinds for bedroom window so at the moment I have newspapers at the window ( bet the neighbours think the clampets have moved in )
I had my first lot of chemo on Friday, what a place this hospital is. My appointment was for 4.30 and I got hooked up to canula at 8.30, nobody took my blood pressure before or after nor temp. I got out at 11.15. I was spoilt I think at my last hospital and as I know this one is the biggest and supposed to be the best in the country they are running people through constantly so it wil be expected. They have put me on a 1 hour bag of carboplatine & 30 min of Gemcitine I think it's called.
Next Friday I only have the Gemcetine so not too bad, then the week after nothing, it all starts again then so will go on until February. I have already started with thrush in my mouth and woke up at 4:45 with the steroids and a bright red face, so took an antihistamine.
Anyway ladies keep sending all the good news and Jackie take it easy with all that work be done.
Love as always Eileen xxxxxxxxxxxxxxxxxxxx Ps really miss you Rose. xxxxxxxxxx
I didn't realise you were starting chemo so quick, must have missed it or miss-read what you'd written. What a pain if you have to wait so long each time, not sure I would be so patient! Don't worry about the blood pressure or temp that only relates to Taxinol, as far as I can work out they don't do it for the others lol. I get oral Thrush each time my steroids go above 10mgs, there are treatments so if it don't go say something as I find it really effects the taste buds . So far it don't sound like its affecting you to much and your not heading towards an admission, so that's something!
You sound like you have much more energy than me, I'm stripping wallpaper and achieve 2 sheets per day lol but hey that's enough to keep me happy! The house is coming on but its a total mess, the one advantage is there's no point wasting time cleaning it at the moment! Front windows arrive wed, you have newspaper I've got ply board lol. Think it will get worse when they move indoors to the chimney and wall moving but I'm sure it will be worth it
You take care and don't overdo it as the chemo builds up, stay positive remember I 'only' got 6 months out of my first treatment but am now a year from my second one and still going strong!
Eileen I hope you cope better with this chemo, I could never understand why I had to leave home at 9am and not get back until after 5pm for what was really a couple of hours treatment, I do hope that it won't be as long for you every time and that you don't have too many side effects.
I hope you are able to settle into your friends place and not have this house hunting hanging over you anymore, you have enough to deal with at the moment.
Jackie great to hear your news, I don't have much energy either but I am not sure it is because I have just become lazy haha.
Sharon and Maisie I hope all is going along as it should with you both
Hi dot jackie and all you other ladies, thanks.for your good wishes things turned out a little different to what I expected !!!!!.Horrendous diarrhoea for this last two weeks it rather limits leaving the house ,, the only plus is that my time for running upstairs to the bathroom has improved greatly I might even apply to enter the olympics . Have felt very lethargic have had much more pain than before BUT it all seems to be settling down now not out of the woods yet ,but I feel I'm getting there .Wont know for another 6 to 8 weeks if has done any good .I'm sure you have all coped with worse,and some of you are coping right now ,my thoughts are with you .I was stunned to hear how long hospital waits for chemo some of you have had.Over two 6mth sessions of chemo, I was only I ever late once for an hour and that was because the pharmacy was late sending up the chemo all other times it was about 2hrs. Then home.I go to Weston Park Hosp Sheffield which is specifically for all types of cancer very busy ,with a large catchment area.so they don't do so bad.They even offered me a manicure ,( there is a beauty treatment room just by the chemo suites ) on the day I had to wait ,my nails are rubbish but I had them done anyway !!!. Love and Best wishes to everyone take care. Maisie. XXX
Sorry you are having a rough time but I love that you are keeping your sense of humour about getting to the loo faster lol. It might be worth you enquiring about Loperamide, Eileen and I have IBS and every step of the way of my treatment I had to take it just to get out of the door, it caused me a bit of a problem with the operation because 'it bunged me up' lol and they were trying to empty my bowels teehee.
The not knowing is difficult to handle, we just have to trust in what 'they' are doing, are you given anything to manage the pain? Stay as positive as you are!!
Sorry not been on but I was in hospital for 4 days. I only got out last night. I should have had my 2nd chemo last Friday but my bloods went down to 0.8 so they wouldn't do it. I had been have in trouble with my bowels after the 1st chemo but ( consipated then watery stuff ) It was awful as I couldn't keep off the loo. Anyway Sunday there was blood and a mucus in my stools so I rang the hospital and they had me in...
My bloods went up to 1.6 on Monday then down to 1.1 on Tuesday so I had to have the injection in my tummy which brought them back yesterday to 11..... So I should be having my 2nd chemo now a week tomor, so fingers crossed.....
I had a leak in the house last week, well actually 2 leaks... So the scaffolding went up yesterday and they need to do the bay window and some pointing ....Not as bad as what your going through Jackie.. Hope your coping with it all..
Sorry to hear you had to go into hospital yet again, I thought you would have done better this time with a different chemo. I wish I lived closer to you and could give you a big hug, nothing seems to run easy for you at the moment.
