I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Bless you Eileen your not having much luck with the housing, hope you find something suitable soon. My extention has started and so far its not going badly, dogs are not even barking which I'm well chaffed at cos it would have driven me mad if they did! Had a big trench Monday but now have 3 rows of brick! something called hoggins (!!!) arrive tom then the floor gets concreted apparently. As i'm getting 2 extentions (1 front + 1 back) and rearranging the internal walls apparently it won't be finished till Jan/Feb, i'm assuming thats more likely to be Feb/March lol. Can I wait that long before chemo is the queston????? don't know is the answer but i will surely try!!!
Will have fingers crossed for you tom and you will as ever be in my thoughts (despite the hoggins!)
I can't remember if I told you all my news so sorry if I didn't and sorry if I did and am repeating myself ha ha...
It is in my pelvis not the bowel and it seems to be at the top of my groin in my viens I think he said. He did mention lymph nodes but don't think it's in them. You forget really when they are talking and my friend can't remember either ( what a pair ) I have a GFR test next Monday to check my kidneys. And then start the chemo which is not carbo/ taxol this time. He is putting me on another one but my friend has the paper so I don't remember the name of it. Will let you know though when I get it back. All I know is you don't lose your hair with this one... Will send a post tonight.
So its back in the pelvis (same here) you don't think its in the nodes (mine is, makes no difference) its probably pressing on the veins in your groins which is causing your symptoms, all in all not as bad as you expected! He can't be using my chemo as I still lost hair though not as fast and not as much, so let us know the name of it when you catch up with your friend.
Not great news like our Dot but not bad either, I assume he's changing the chemo as you were so poorly last time so you need to behave this time lol
He did mention the nodes but as I say can't remember what he said.
The chemo is Gemcitabine and Carboplating . I am so glad I have you to ask all these questions to and all of the ladies. Isn't it a pity that we are all not near each other, how good would that be...
Eileen, hopefully you will cope better with the chemo this time.
I often come back from the hospital wondering if I understood as much as I did when I was in there lol. I don't really know what to say to you other than repeat what Jackie and Sharon have all ready said, it seems never ending, there is no choice over any of the things that is happening to us all, it is a case of going with what others (medical people) decide we need.
Just for a bit of light relief for you all............I have been given those 'lovely stockings' from the lymphoedema clinic and my legs and feet are not as swollen. They told me there is no way of knowing who will be affected with lymphoedema after having lymphs removed or damaged.
The first day I wore them I felt very tender and swollen where my ovaries were, apparently the stockings help the fluid to go to lymphs that are working and from what I see it is now going to my belly lol. I now have constant heartburn lol.... I will ring up and ask if this is the norm but I feel ridiculous asking the question haha. Writing this prompted me to ring up and I laughed when I asked about it, seems that the swelling elsewhere can happen but heartburn etc isn't usually associated with it, they told me that doesn't mean it can't happen, and recommended I speak to my doctor lol. I think I will just take more antacids lol. My dilemma is......swollen legs or swollen belly, which do I chose hahahahaha.
Eileen Jackie and Sharon my thoughts are with you all constantly, I do hope we hear some good news for you all soon.
For what its worth my friend and myself can never remember whats said at appointments and she's still working as a nurse! just goes to show when its close to home the brain will only take in so much!!! We also have a habit of discussing things when we come out and can't believe that we let him away with some of the things he's said - they made perfect sense in the consulting room but none at all after!
Dot, I bet the stocking look delightful if you give it a while the lymph system in the abdo may get used to all that fluid again and your tummy will go down. Do make an appointment with your GP as Losec may be better than antacids(and there only once a day!)
Eileen, have heard of that as a combination therapy but don't know anything else, will look it up when I get time but things are a tad crazy at the mo! When are you starting it?
Judy I beat you have my next appoint on the 7th Oct hate going just because, I'm not ready for chemo so whats the point??? Oh sugar that means I'll have to get some blood tests sorted what a waste of time.
Extension going up rapidly and the good weather has helped them (but not me lol really really itchy again ) have been stripping wallpaper and it feels good to be more active, can't do much but by sitting down for 5 mins frequently I'm getting there!
Hi everyone,have had 3 of my 5doses of radiotherapy .H ave been told that they are large doses and I am only having 5 because the body can't take more of that strength at one go ,that is different to what I was told in clinic.( was told they would be low doses )'Feeling. A bit sick, tired and sore already though they said the side effects will probably not kick in until I have finished the course. Found out why I was offered radiotherapy when it is rarely used for ovarian cancer .apparently most women have a more wide spread cancer,which is difficult to treat,and as my 3 areas of spread are so close together it is possible to "Blast "them all at once .At the moment it feels as if I have a solid cannonball in my abdomen still upwards and onwards hope you are all as ok as you can be love Maisie x x x
sorry to hear you are feeling sore after your treatment, I have heard differing reports on radiotherapy, many have been very positive, I just hope the side effects don't last long!! You sound positive and that is great!!
I hope all goes well with you
Hugs to you...........Jackie Eileen Sharon, and anyone else who needs one.
