I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
I to have ovarian cancer diagnosed in Jan 2009. I had 3 lots of chemo, operation, and another 3 lots of chemo.
The main problems I had with the chemo were gross taste in mouth and nothing tasted like it should, neuropathy of fingers and feet, these got worse with each chemo, but taste improved after about 6 weeks, fingers and feet improved but I still have neuropathy in my left foot (and right but only when I walk!). Hair loss - very slow to grow back and now have corkscrew curls! Tiredness but only realised how bad once I returned to work!
Most of the complications I had with chemo have been rare ones but then I only got diagnosed with ovarian cancer due to a rare autoimmune disease! I developed arterial bloods clots (aortic settling in left Femeral artery) just before my 4th dose, had daily blood thining injections but still developed another clot 5 days after the 6th dose! The onchologist/haematologist aren't sure if its cancer or chemo related and they don't seem to have personally come across it before so please don't worry about it!
I would be interested in hearing about plans for followup when you get that far.
I don't get my results until Tuesday Eileen, I like you... am prepared for whatever comes along, I stay positive but I am a realist and this thing we share is unpredictable. I hope your fears are unfounded but know how you are feeling. I have had the all clear for nine months now and instead of becoming more confident that it has gone, the little old gremlins have crept in lol, darn those little creatures hahaha. Please keep us up to date as soon as you find out!! Hopefully you have somewhere nice to move to, what an upheaval for you when you are not feeling too good.
John.. I am glad Mary is doing well, it is a good idea to have a holiday, I grab each day that comes with gusto and positivety (well, most of the time) lol. We have to keep our lives as normal as possible through all of this and from your posts you and Mary are doing just that.
Sharon it's good to see you back on the forum and all is going well for you, I have very mild problems with my hands and feet and feel for you knowing that yours are very painful, I do hope that yours will improve and the pain relief will be more effective.
Chemo does take its toll, I was told the fluid I am carrying could be many things, two of which are the removal of the lymph glands or chemo, it is a very harsh treatment but without it where would we be!!
Jackie is a concern to me too, it is unlike her not to pop on and let us know how she is doing, hopefully we will hear from her soon!!
My thoughts and prayers go out to all of you and anyone else who reads this post
It is great to see you back online, I always think of everyone on a daily basis. Anyway I apologise to everyone but I do think about you all.... I know that chemo is tough but it keeps us alive. I was thinking about the chemo today and it's like when you have a baby you forget the pain afterwards and with me I forgot about the chemo side affects like pains in your legs, feeling faint ect... god something to look forward too. Have you got neuropathy in your hands and feet ?
I hope your hair is back for Christmas as well and we must try and get together all of us very soon.
Take Care Sharon lots of love and hugs ...Eileen xxxxxxxxxxxxxxx
Oh so your like me then playing the waiting game ? I am dreading it and wish they would ring us up with the results as it is sitting in that waiting room ( I call it gods waiting room ha ha ) And waiting to hear I am sorry ? or I am pleased ? I hope everything is good news for you Dot after what you have been through. I have felt great nearly all this year but have had twinges at the bottom of my stomach where the ovaries use to be and now in my groin. I am sick of looking up all the differnt types of cancers there are as I think I have them all
Still no word from Jackie I am so worried about her as she is the wise owl who helps us all with her wisdom... I do wish she would get in touch..
Anyway Dot my thoughts are with you on Tuesday and although I am not there with you I will be in my head...
Love and hugs to you and John, Mary and everyone. xxxxxxxxxxxxxx
Me agin just been looking at old posts and it is 1 year today since we lost Jayne. I hope her family know we still think about her and anyone we knew who lost there battle...
Thanks Eileen for reminding us, Jayne was a lovely person, my thoughts are with her family today and always.
I was still on the forum reading all the posts when your mail came through, I was thinking of everyone on here (not just our little section).... those I have chatted with and those I follow but never post to, people like Dizzie Shents and Tony to name but a few, their blogs are inspiring...they seem to know the exact words to write to comfort and assure many on here, me included.
Hello everyone. Thankyou for thinking about my mum. Im still following all of your post. All of you are being so brave and strong! Keep fighting and stay strong.
Hi everyone its me and i'm fine! there was no activity on the site for so long I stopped checking as often
Dot and Eileen, sorry to hear your both awaiting news, fingers crossed it will be good if not you've been there and done that so you know you can handel it! both of you have had 8-9 months i think which by my standards is very good lol. Mines back but is growing slowly so as yet the muscles are working (sort of!!!) i have refused chemo to sort the itch and will wait till the muscles go. Have creams, anti-histamines and steroids for the itch and its working well till the weather heats up lol, 25 degrees yesterday and today so needless to say its palying up! My last scan showed tumour but not as big as previous, while the temptation is to go for chemo there is a limit to how much the body can take before the bone marrow can't cope so i have decided that the longer i can leave it the better, i will be a year free of chemo in october!
I was terribly sorry so hear about Rose and can't believe how long it is since we lost Jayne though it probably dosen't seems long to Ben.
Glad to hear Mary's doing well and Eileen you sound like you've got back to normal (something I've never achieved). Dot your legs sound most uncomfortable and I not sure there is much that can be done to help
Judy the neuropathy will wear of in time but it does vary, mine was a numbness/tingling type feeling, felt most odd but it when eventually. Let us know how the hairs doing - mines different again this time - not impressed!
Just stopping by to say how lovely it is to see you back on here. I got the email alert to say a message had been left and was pleasantly surprised to see that it was left by you!
